Zebransa's Journal

Some days are just worse than others.  I have been having so much pain for the past month.  I just wonder if I am getting more tumors, bigger tumors or what.  This really sucks.  I am only suppose to take 3 percocets a day and I need at least 5.  I hate this.  I wonder if the Octreotide helps.  I know it help with the flushing but I mean if it helps with tumor growth.  

I hate having something so rare and not having anyone to talk to about it.  I just don't want any tests because I don't see what good they would do. This is just not good.