Well...
March 4, 2009 7:26pm
Looks like I may have done it!
MyMsBs 
1:55pm, March 5, 2010
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About Me
MyMsBs
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About Me
Was a career paramedic, now a photographer who sets his own hours around family and the way I feel.
Was a career paramedic, now a photographer who sets his own hours around family and the way I feel.
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Recent Activity
March 10
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MyMsBs and LastWinter are now friends 7:25pm
March 9
March 8
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MyMsBs wrote a discussion post in the Multiple Sclerosis (MS) support group: Vibrating, not twitching is back... 6:03pm
Anyone else out there get vibrating sensations in your limbs and even sometimes in the trunk? I do...…
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March 5
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MyMsBs updated their status 1:55pm
Things could be worse.…
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Journal
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Hugbook
Hug
keep feeling good no matter what. ok have a good night and week
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Hug
how are you doing?
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Rainbow
hoping the same things for you!
Thumbs Up
i thank you for the info. what do you take for them? or do you do nothinnnnnng. i am so tired o all these weird pains.
lorrie-
Flower
what can i say but 'thank you." i did not know what is, and with all the other stuff, it seems inconsequential. take care, be well.
lorrie
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Photos
MyMsBs hasn’t uploaded any photos yet
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Goals
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Support Groups
Close Multiple Sclerosis (MS)
Type: Progressive Relapsing MSI was one of the "lucky" ones (not) that spend nearly 10 years getting Dx'd . The exacerbation that ended my paramedic career was also the one that sealed the Dx. Some days are pretty good... some days just really sux and the rest are in between, but I'm not telling any of you folks anything new there huh?
Treatments
- Baclofen Somewhat Helpful
- Too much fatigue with it. No longer on it.
- Copaxone Working / Worked
- Who knows what it is doing. Pain in the butt when it comes to daily injections. Word to the wise... don't use the auto injector if you don't Copaxone Reaction.
- Neurontin Not Working
- Didn't work, made me feel worse.
- Provigil Working / Worked
- Worked fairly well at first but became less and less effective as time went on in spite of adjusting the dose up to the max.
- Solumedrol Working / Worked
- Had some improvement with the last round, but no "big fix" by any means. Regimen was 4g total IV... 1g/day for 3 days the 500mg/day for last two days. No "roid rage" but towards the end I was getting very short tempered and bitchy. Also if I looked at food I got heartburn.
- Symmetrel Working / Worked
- Would actually take this again (making mental note to remind doc). Did get some energy improvement, but best of all, I don't recall having cold any of the time I was on it! What a bonus!!
- Zanaflex Working / Worked
- Helps persistent spasms as well as has some effect on myoclonus. Very minimal side effects if any.
- Clonazepam Working / Worked
- The only thing my doc and I have found that helps with spasms, myoclonus and most importantly... burning/tingling parathesias.
- Prozac Working / Worked
- Prozac is the trade name. Helps with the general anxiety/depression and my experience with it, is it is like taking a drink of water. Zero side effects.
