My TN is back
May 29, 2009 9:54pm
After quite a long break from TN, it has returned recently with a vengeance. I am going to get another MRI to attempt to figure out what is …
kpetrescu 
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About Me
kpetrescu
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About Me
I am a mostly stay-at-home mom of 2 young kids. My husband and I run a property management company. I am living with trigeminal neuralgia and trying to stay off meds, as I am tired of the bad reactions and side effects. I find it hard to discuss it with anyone close to me, because there is no way to explain it to someone who has not experienced it. I want to be a good mother and wife, but living with the pain is difficult to handle. It is a daily struggle that I need support for.
I am a mostly stay-at-home mom of 2 young kids. My husband and I run a property management company. I am living with trigeminal neuralgia and trying to stay off meds, as I am tired of the bad reactions and side effects. I find it hard to discuss it with anyone close to me, because there is no way to explain it to someone who has not experienced it. I want to be a good mother and wife, but living with the pain is difficult to handle. It is a daily struggle that I need support for.
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Thank you for the lovely thoughts. I actually have lost touch with family (my mom & 3 sisters this year) because they don't like this TN thing either and there are other reasons. But support, DS is it and I am so thankful for it right now. I am very sad about my family but they were cruel always and I just had to stop when it got worse with my girls. I found out recently that I wasn't my sisters full blooded sister and that has caused a strain, not that it should but they are weird. My Mom is a piece of work and I don't want my girls to witness their mother being talked to in a rude way so I am taking a break for awhile. I take Baclofen at night which helps but I am hoping I adjust to the neurontin because I have had TN for 18 years and I really need relief. I have 3 lines to type and I can't see what I am typing! Well, take care and thanks again for your words! -Holliday
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Hope soft food helps. Try the low fat diet as well.
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Yes, I am seeing an anesthesiologist today in fact. And we shall see what he recommends. I am already taking Cymbalta, Pamelor, Trileptal & Topamax but that just controls the shocks and the migraines for the most part. My constant pain is my serious problem and I also have occiptal neuralgia which is really acting up today so it really hurts to blink - hurts worse than child birth I would say! BTW, my girls are 4 & 9 :o) I will let people know how it goes with the doc today. I sure hope yours goes back in to remission - if it has done it once it can do it again. -Holliday
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No problem. Glad you reply. I must say this site is great.
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I have two little girls that see their mom w/ ice packs on her head 3 times a day. Pain medicine doesn't touch my pain (well, the hard stuff does for a couple hours but I am given very small quantities by a doc who is afraid to give me enough) so I have been suffering for 17 years (I am now 46). I have some great tips for coping that I have learned over the years that I can share with you & you have found a great group to join. In some ways people here no more than doctors! There are great books to read, home remedies & certain life style adjustments that you can make to help your pain ease up so that you can enjoy your life more w/ your family. Life is tough w/ TN, no doubt! really tough and I am having a tough day myself but I am glad you found our group - what a great group of friends that I can call home for myself for advise and friendship when it gets really tough. Welcome! My name is Holliday ;o)
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Close Trigeminal Neuralgia
I have had TN for 2 years and it has just returned. It is agonizing and I have no one to talk to about it. I have 2 unbelievably wonderful young children and I can't stand them seeing me this way. I am terrified that I might have MS, as I am only 35. I'm getting another MRI very soon, since my neurologist is concerned about its return. I am scared and alone.
Treatments
- Neurontin Too Soon to Tell
- Just started gabapentin. I have been on it in the past. So far feeling dizzy and out of it but TN still stronger than ever. Well see if it works this time. I am starting at 300 mg twice a day. May have to build up to 2 3 times a day.
