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cheri1216 
6:52pm
Well you know the old saying when life gives you lemons make lemonade, well my lemonade maker is working slowly. By lemons I mean being one of the chosen who has this "wonderful" disease called Narcolepsy. Most days I classify myself as being good, when in reality I am semi-good. My Xyrem has started working again, and I actually wake up feeling pretty good. I guess my Addarrall XR is doing what it is suppose to, but I don't think it's enough. I mean it keeps me awake during the day at work, but when I get home I am absolutely worn out, I have no energy to do anything. On the weekends I am good until late afternoon and again I am worn out. I am ready for bed by 8:30 every night, which is pretty sad for a 52 year old woman. I know I will never be like I was before, but I really want to be better than this, and I am afraid that will never happen. I know one of the purposes of Xyrem is to control EDS but mine is not doing that, and I am almost afraid to go to the doctor at the end of the month, because I am worried he will want to take away one of my Addarrall doses, and I don't think I will be able to function. I have really bad shaking in the morning from the Xyrem but I have learned to compensate for it, but I'm not sure I can compensate for less stimulants. Oh well my eyes are starting to cross, and I am getting a headache so I guess I will sign off for now. Hopefully my lemonade maker will speed up a bit one day soon.
Comments
So well written Cheri. I feel exactly the same. I'm a 51 year old feeling like life is just slipping by without me having the energy to totally enjoy it as I should.
You have a really good nack of putting your thoughts into words. Keep it up.
shazzaS