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  • About Me

    Image of treasurechick

    treasurechick

    Female, 41
    Raleigh, NC, USA
    Member since December 19, 2008

    • About Me

      My daughter passed away from Zellweger Syndrome at 4 1/2 months on December 20th, 2004 I started the Zellweger Baby Support Network in January 2005 www.zbsn.org

      My daughter passed away from Zellweger Syndrome at 4 1/2 months on December 20th, 2004 I started the Zellweger Baby Support Network in January 2005 www.zbsn.org

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  • Support Groups

    • Close Zellweger Syndrome

      Olivia Danielle Freeth was born on July 29th, 2004 and lived 4 1/2 months. She had Classic Zellweger Syndrome.

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