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  • About Me

    Image of sophiadog

    sophiadog

    Female, 62
    Kansas City, MO, USA
    Member since December 18, 2008

    • About Me

      designer for children's projects-love to read, do yoga and garden when possible

      designer for children's projects-love to read, do yoga and garden when possible

  • Recent Activity

    • Sorry, there is no activity in the My Activity feed.
  • Journal

    • Repetitive vs Single Fiber EMG

      Mood January 15, 2009 10:13am

      I am scheduled for a repetitive EMG today for MG.  Is this any more painful than other EMG's I have had. Apparently John Hopkins did not …
    • Diagnosis with no antibodies

      Mood December 18, 2008 2:05pm

      I am new to this group.  I have had ongoing neuromuscular problems for almost 40 months.  Started out with leg cramps and left leg …

    Read Journal

  • Hugbook

    Give sophiadog a hug



    • I’m With You

      From MGnorby2008 September 13

      I hope you are doing OK. MGNorby

    • Hug

      From BreatheEasy January 20

      Hi there. Here is a rather belated welcome to DS. I am sure you will make lots of new friends and will find DS a great source of empathy and support. Hugs! JOAnn

    • Prayer

      From MGnorby2008 January 4

      I will pray for you to have a successful doctor's visit on the 13th. I have been fighting a cold so I called my neurologist and he said I could take sudafed with my MG medication. I do not feeling like eating at all since it is a task to chew. He said it is part of the MG so I hope nothing else goes wrong this year. God Bless

    • I’m With You

      From SaraG January 2

      I am glad to know that we are orchids, I like that!!!! The best way to know if you might have Fibro is to read the symptoms and see how many you have. I have almost all of them. I am on doctor overload, too, I feel better when I don't go. Less to worry about!!! The only real test for Fibro is the tender points of your body, which the doctor pushes on and the symptoms you have. No medical tests! Have a good evening and keep in touch! Bye! Sara

    • Prayer

      From MGnorby2008 January 2

      Hang in there, just tell your doctor about your eye lids, your hurting all the time and shortness of breath and let them test you so they can determine if you have MG. They can also do a lot of manual testing to determine if you show the signs of MG. Good Luck and keep me posted. MGNorby2008

    Read Hugbook

  • Support Groups

    • Close Myasthenia Gravis

      I have had seronegative MG for four years Love to garden when I can and read, do yoga

    • Close Sleep Apnea

      I am 56 years old-have severe sleep apnea and neuromuscular problems-like to travel, read, garden and do yoga

      Treatments

      CPAP Working / Worked
      Use a self adjusting Bi-Pap with 3 liters of oxygen at night at the setting of 17/13-Sometimes I am so fatigued even though the Bi-Pap seems to work so much better than the CPAP
  • Friends


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