Journal Entry for January 8, 2009
January 8, 2009 3:47am
A little venting here. Sooo I'm totally dating a douchebag. Yes, I just said that word. I'm a cusser. And he is a douchebag ...but what's …
PerhapsOneDay 
2:29pm, March 24, 2009
-
About Me
PerhapsOneDay
-
About Me
Autoimmune diseases have me rather worn out. The medication Accutane kicked them all off when I was 13, so now I've been sick for 18 years and counting. I recommend trying www.emofree.com and also www.naet.com Both sound a little wacky (but eastern medicine has been VERY helpful for me!) - so I just figure who cares if it works. Ask me about it if you'd like. I can help you learn to do EFT yourself. It's easy and awesome. I had an 8 year semi-remission of anxiety/panics, chemical sensitivities, fibromyalgia, and CFIDS when I used these techniques!!! I had my life back for those years. At this point in life I am not feeling so well. I am finding myself in a place that I had not anticipated (had any of us?) It hurts me that every one of us on here is feeling pain in some form or another. I am sorry for your pain, and I am thankful that you all share your stories.
Autoimmune diseases have me rather worn out. The medication Accutane kicked them all off when I was 13, so now I've been sick for 18 years and counting. I recommend trying www.emofree.com and also www.naet.com Both sound a little wacky (but eastern medicine has been VERY helpful for me!) - so I just figure who cares if it works. Ask me about it if you'd like. I can help you learn to do EFT yourself. It's easy and awesome. I had an 8 year semi-remission of anxiety/panics, chemical sensitivities, fibromyalgia,
-
Interests
Reading, Education/school, , Sociology, Cats, Dancing, Traveling, Dark humored movies, Eastern healing.
Reading, Education/school, , Sociology, Cats, Dancing, Traveling, Dark humored movies, Eastern healing.
-
-
Recent Activity
- Sorry, there is no activity in the My Activity feed.
-
Journal
This entry is private
-
-
Journal Entry for January 7, 2009
January 7, 2009 12:01am
I feel like a broken record when I respond to some posts...I'm always saying "I'm so with you!" or "Same for me!" or …
This entry is private
-
Mono. Relapse. Hope.
January 1, 2009 2:28pm
I am beginning to think that this bout of mono was kicked off by a car accident that I had about a month ago. I was on the interstate, went off the …
-
Hugbook
Hug
Hi Lovely, sending you lots of love and hugs...XX
Little Love
Finally posted the pic of my new haircut!Love,Jen
Hug
elizabeth i hope your ok, it feels like a real long time since you've been on, if you read this please get in touch x
-
Little Love
I'm so glad your back!!I was worried about you.Big (((hugs))))-Jen
Hug
Hope ur doin ok hows the sleep going?have you had youre sleep study?
-
Photos
PerhapsOneDay hasn’t uploaded any photos yet
-
Advertisement -
Support Groups
Close Endometriosis
Gained 30 lb's in 1 month at age 26. Had severe abdominal swelling, terrible pain, nausea, vomiting, 3 months of no period but then it came back, brutally painful when I got my period. Got an endoscopy, a scope down my throat to look in my stomach too, x-rays, a CT scan, ultrasounds. Nothing showed up until the lap. 2 surgeries did not help. Was put on continuous bc, helps some but then after some UTI's it quit working. I have my period, swelling, and pain all the time now.
Treatments
- Extended-Cycle Birth Control Somewhat Helpful
- NuvaRing Somewhat Helpful
- Worked moderately for a year but had continuous break-through bleeding
- Surgery Not Working
- Had two surgeries to remove some tissue. Did not work even a little bit. Will most likely not attempt this again. A couple of dr.'s would not even do the surgery bc initially they said I had no symptoms of endo, when I DID have all the symptoms and I ended up actually having the disease.
- Naproxen Somewhat Helpful
- I take a lot of it. I wish I didnt have to.
- Flexeril Somewhat Helpful
- It helped the pain some but it makes me sooo tired even at low doses.
- Xanax Somewhat Helpful
- Helped the pain also but cant take anything in that family of meds bc it causes me to have severe depression.
Close Interstitial Cystitis (IC)
Started with a kidney infection/UTI. Then the pain never went away, it's really bad. I have a lot of swelling too. Have had a few more infections over the last 1.5 years. It shows up on tests 35% of the time. The rest it does not, BUT I have fevers, chills, vomiting, can't pee, and only antibiotics help (and only to some degree), but dr's don't believe me about the infection! They can't do a cysto until I see a cardiologist for heart probs first.
Treatments
- Macrobid Not Working
Open Fibromyalgia
Got this illness when I was 13 due to taking a medication called Accutane. It triggered a lot of autoimmune probs w/ me. Been sick for 17 years. I'm worn out. I've taken hundreds of meds for this. A few help, most don't.
Treatments
- Acupressure Too Soon to Tell
- Something called EFT (go to emofree.com) has helped a lot of people. Not sure yet about for me.
- Acupuncture Working / Worked
- I did acupuncture (NAET specifically) for 1.5 years and that worked TONS! Tried again 8 years later for 3 months-no response this time.
- Adderall Working / Worked
- Worked well for 2 years for my chronic fatigue. Got some UTI's over the last 1.5 years though and now it works maybe 40% as well.
- Cyclobenzaprine Not Working
- Duragesic Patch Not Working
- Can't take opiates. Makes my stomach swell up and hurts my endometriosis terribly.
- Effexor Not Working
- SSRI's all make my hypothyroidism freak out.
- Heat Somewhat Helpful
- Neurontin Not Working
- TENS Not Working
- Ultram Not Working
- Zanaflex Not Working
Open Myofascial Pain Syndrome
PerhapsOneDay hasn’t entered any details for this support group.Open Anxiety
I have had anxiety my entire life. I think my brain/body is sensitive to any and all changes you can imagine in my environment. I have panic attacks too.
Treatments
- Atarax Somewhat Helpful
- Helped me some, but not as much as benzos. I think it may have added possibly to a little weight gain and depression, but I can't be sure.
- Ativan Working / Worked
- I loved all benzodiazapines for my anxiety. They knock out my panic attacks in 20 minutes flat. I can't take them bc then in two days for two days, I get SEVERE depression. I also had withdrawals, even when taking it regularly.
- Inderal Not Working
- Gave me hardcore depression.
- Klonopin Working / Worked
- Same results as the ones in the Ativan box above.
- Luvox Not Working
- See below in the box on Paxil - same results.
- Paxil Not Working
- Didn't work. All SSRI's make my hypothyroidism worse.
- Positive Thinking Somewhat Helpful
- You know what else helps me when I have panic attacks? I call someone and talk about something interesting, tell them a story, have them tell ME a story...I have to get out of my head, keep it busy!
- Valium Working / Worked
- See box on Ativan or Xanax.
- Xanax Working / Worked
- Love it for panic attacks, but can't take it bc of severe depression that shows up 2-3 days later. Also had withdrawals even while on it.
- Zoloft Not Working
- Carisoprodol Somewhat Helpful
- Since I can take it sometimes this does help me a little. I take it for pain mainly though.
Open High Blood Pressure
PerhapsOneDay hasn’t entered any details for this support group.Open Chronic Fatigue Syndrome
Well I certainly miss my life...school, work, everything. Anyone do a sleep study for their CFIDS? I am interested in trying it.
Treatments
- Pain Management Clinic Somewhat Helpful
Open Stress Management
PerhapsOneDay hasn’t entered any details for this support group.Open Mononucleosis
PerhapsOneDay hasn’t entered any details for this support group.Open Alcoholism
I am not a recovering alcoholic. I drink alcoholic in excess because it actually helps the symptoms of my diseases. An excuse? No. But that doesn't mean I don't realize its dangers. I'm not here to quit at this moment, but I am here to become educated. Thank you.
Treatments
- AA Meetings Not Working
- I know this program works for a lot of people, but it SUCKED for me. I went into a deep severe depression from it. That's just me...I know many others have been helped tons by it.
- Willpower Not Working
- I'm the world's worst expert on willpower. Literally it's laughable. :) But at least I'm laughing, right??
Open Anger Management
PerhapsOneDay hasn’t entered any details for this support group.Open Back Pain
Treatments
- Acupuncture Working / Worked
- Carisoprodol Working / Worked
- I can't take opiates and this has been one of my wonder drugs, one of few. I really really like it!!
- Chiropractic Adjustment Not Working
- Cortisone (Injection) Not Working
- Darvon Working / Worked
- Helped, but I developed sensitivity to opiates. Hurts my endometriosis/lower abdomen.
- Epidural Injection Not Working
- Fioricet Working / Worked
- Helped in the past, but I developed sensitivity to opiates.
- Flexeril Not Working
- Nah, just felt like I was in a drug hangover the next day.
- Heat Somewhat Helpful
- Same w/ ice packs.
- Hydrocodone Working / Worked
- Kinda worked, can't take them anymore though bc I became sensitive.
- Ibuprofen Not Working
- Not strong enough.
- Naproxen Not Working
- ..but it does help with my endometriosis and interstitial cystitis.
- Physical Therapy Considering
- Tried it a couple years ago with no success, and one day when I'm not so tired I'll try it again.
- Stretching Somewhat Helpful
- TENS Not Working
- Couldn't actually get deep enough into my muscles.
Open Chronic Pain
Treatments
- Chiropractic Adjustment Not Working
- Flexeril Not Working
- Heat Somewhat Helpful
- Hydrocodone Somewhat Helpful
- Lidoderm Not Working
- Marijuana Not Working
- Oddly enough it hurts my lower abdomen and makes it swell up and sometimes makes me throw up. wtf? Anyone else?
- Methadone Not Working
- Had the WORST withdrawal I could even imagine for months and months. Didn't even help my pain.
- Mobic Not Working
- Naproxen Not Working
- Neurontin Not Working
- Oxycodone Somewhat Helpful
- Physical Therapy Not Working
- TENS Not Working
- Topamax Not Working
- Non relief from pain and had severe depression from this med.
- Carisoprodol Working / Worked
- Love it.
Open Environmental Allergies
Type of allergy: Multiple Chemical SensitivityNAET (specific acupuncture) - had almost two years of this treatment and it put me into an 8 year remission. Had a set back though now, but still NOT as bad as I had been!
Open Financial Challenges
PerhapsOneDay hasn’t entered any details for this support group.Open Agoraphobia & Social Anxiety
I've always been nervous, even though I'm outgoing too. I don't like places packed w/ lots of people. I don't like leaving my house alone-so I don't get a lot done. I got better for awhile, but it's back. It's irrational and I want it to stop.
