Journal Entry for January 8, 2009
January 8, 2009 3:47am
A little venting here. Sooo I'm totally dating a douchebag. Yes, I just said that word. I'm a cusser. And he is a douchebag ...but what's …
PerhapsOneDay 
2:29pm, March 24, 2009
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About Me
PerhapsOneDay
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About Me
Autoimmune diseases have me rather worn out. The medication Accutane kicked them all off when I was 13, so now I've been sick for 18 years and counting. I recommend trying www.emofree.com and also www.naet.com Both sound a little wacky (but eastern medicine has been VERY helpful for me!) - so I just figure who cares if it works. Ask me about it if you'd like. I can help you learn to do EFT yourself. It's easy and awesome. I had an 8 year semi-remission of anxiety/panics, chemical sensitivities, fibromyalgia, and CFIDS when I used these techniques!!! I had my life back for those years. At this point in life I am not feeling so well. I am finding myself in a place that I had not anticipated (had any of us?) It hurts me that every one of us on here is feeling pain in some form or another. I am sorry for your pain, and I am thankful that you all share your stories.
Autoimmune diseases have me rather worn out. The medication Accutane kicked them all off when I was 13, so now I've been sick for 18 years and counting. I recommend trying www.emofree.com and also www.naet.com Both sound a little wacky (but eastern medicine has been VERY helpful for me!) - so I just figure who cares if it works. Ask me about it if you'd like. I can help you learn to do EFT yourself. It's easy and awesome. I had an 8 year semi-remission of anxiety/panics, chemical sensitivities, fibromyalgia,
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Interests
Reading, Education/school, , Sociology, Cats, Dancing, Traveling, Dark humored movies, Eastern healing.
Reading, Education/school, , Sociology, Cats, Dancing, Traveling, Dark humored movies, Eastern healing.
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Journal
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Journal Entry for January 7, 2009
January 7, 2009 12:01am
I feel like a broken record when I respond to some posts...I'm always saying "I'm so with you!" or "Same for me!" or …
This entry is private
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Mono. Relapse. Hope.
January 1, 2009 2:28pm
I am beginning to think that this bout of mono was kicked off by a car accident that I had about a month ago. I was on the interstate, went off the …
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Hugbook
Ray of Sunshine
I'm glad to see your back online. I'm sending you a little sunshine your way. I've been thinking about you with faith, hope and love. Rainey xoxo
Hug
Hi Lovely, sending you lots of love and hugs...XX
Little Love
Finally posted the pic of my new haircut!Love,Jen
Hug
elizabeth i hope your ok, it feels like a real long time since you've been on, if you read this please get in touch x
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Little Love
I'm so glad your back!!I was worried about you.Big (((hugs))))-Jen
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Photos
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Support Groups
Close Endometriosis
Gained 30 lb's in 1 month at age 26. Had severe abdominal swelling, terrible pain, nausea, vomiting, 3 months of no period but then it came back, brutally painful when I got my period. Got an endoscopy, a scope down my throat to look in my stomach too, x-rays, a CT scan, ultrasounds. Nothing showed up until the lap. 2 surgeries did not help. Was put on continuous bc, helps some but then after some UTI's it quit working. I have my period, swelling, and pain all the time now.
Treatments
- Extended-Cycle Birth Control Somewhat Helpful
- NuvaRing Somewhat Helpful
- Worked moderately for a year but had continuous break-through bleeding
- Surgery Not Working
- Had two surgeries to remove some tissue. Did not work even a little bit. Will most likely not attempt this again. A couple of dr.'s would not even do the surgery bc initially they said I had no symptoms of endo, when I DID have all the symptoms and I ended up actually having the disease.
- Naproxen Somewhat Helpful
- I take a lot of it. I wish I didnt have to.
- Flexeril Somewhat Helpful
- It helped the pain some but it makes me sooo tired even at low doses.
- Xanax Somewhat Helpful
- Helped the pain also but cant take anything in that family of meds bc it causes me to have severe depression.
Close Interstitial Cystitis (IC)
Started with a kidney infection/UTI. Then the pain never went away, it's really bad. I have a lot of swelling too. Have had a few more infections over the last 1.5 years. It shows up on tests 35% of the time. The rest it does not, BUT I have fevers, chills, vomiting, can't pee, and only antibiotics help (and only to some degree), but dr's don't believe me about the infection! They can't do a cysto until I see a cardiologist for heart probs first.
Treatments
- Macrobid Not Working
Open Fibromyalgia
Got this illness when I was 13 due to taking a medication called Accutane. It triggered a lot of autoimmune probs w/ me. Been sick for 17 years. I'm worn out. I've taken hundreds of meds for this. A few help, most don't.
Treatments
- Acupressure Too Soon to Tell
- Something called EFT (go to emofree.com) has helped a lot of people. Not sure yet about for me.
- Acupuncture Working / Worked
- I did acupuncture (NAET specifically) for 1.5 years and that worked TONS! Tried again 8 years later for 3 months-no response this time.
- Adderall Working / Worked
- Worked well for 2 years for my chronic fatigue. Got some UTI's over the last 1.5 years though and now it works maybe 40% as well.
- Cyclobenzaprine Not Working
- Duragesic Patch Not Working
- Can't take opiates. Makes my stomach swell up and hurts my endometriosis terribly.
- Effexor Not Working
- SSRI's all make my hypothyroidism freak out.
- Heat Somewhat Helpful
- Neurontin Not Working
- TENS Not Working
- Ultram Not Working
- Zanaflex Not Working
Open Myofascial Pain Syndrome
PerhapsOneDay hasn’t entered any details for this support group.Open Anxiety
I have had anxiety my entire life. I think my brain/body is sensitive to any and all changes you can imagine in my environment. I have panic attacks too.
Treatments
- Atarax Somewhat Helpful
- Helped me some, but not as much as benzos. I think it may have added possibly to a little weight gain and depression, but I can't be sure.
- Ativan Working / Worked
- I loved all benzodiazapines for my anxiety. They knock out my panic attacks in 20 minutes flat. I can't take them bc then in two days for two days, I get SEVERE depression. I also had withdrawals, even when taking it regularly.
- Inderal Not Working
- Gave me hardcore depression.
- Klonopin Working / Worked
- Same results as the ones in the Ativan box above.
- Luvox Not Working
- See below in the box on Paxil - same results.
- Paxil Not Working
- Didn't work. All SSRI's make my hypothyroidism worse.
- Positive Thinking Somewhat Helpful
- You know what else helps me when I have panic attacks? I call someone and talk about something interesting, tell them a story, have them tell ME a story...I have to get out of my head, keep it busy!
- Valium Working / Worked
- See box on Ativan or Xanax.
- Xanax Working / Worked
- Love it for panic attacks, but can't take it bc of severe depression that shows up 2-3 days later. Also had withdrawals even while on it.
- Zoloft Not Working
- Carisoprodol Somewhat Helpful
- Since I can take it sometimes this does help me a little. I take it for pain mainly though.
Open High Blood Pressure
PerhapsOneDay hasn’t entered any details for this support group.Open Chronic Fatigue Syndrome
Well I certainly miss my life...school, work, everything. Anyone do a sleep study for their CFIDS? I am interested in trying it.
Treatments
- Pain Management Clinic Somewhat Helpful
Open Stress Management
PerhapsOneDay hasn’t entered any details for this support group.Open Mononucleosis
PerhapsOneDay hasn’t entered any details for this support group.Open Alcoholism
I am not a recovering alcoholic. I drink alcoholic in excess because it actually helps the symptoms of my diseases. An excuse? No. But that doesn't mean I don't realize its dangers. I'm not here to quit at this moment, but I am here to become educated. Thank you.
Treatments
- AA Meetings Not Working
- I know this program works for a lot of people, but it SUCKED for me. I went into a deep severe depression from it. That's just me...I know many others have been helped tons by it.
- Willpower Not Working
- I'm the world's worst expert on willpower. Literally it's laughable. :) But at least I'm laughing, right??
Open Anger Management
PerhapsOneDay hasn’t entered any details for this support group.Open Back Pain
Treatments
- Acupuncture Working / Worked
- Carisoprodol Working / Worked
- I can't take opiates and this has been one of my wonder drugs, one of few. I really really like it!!
- Chiropractic Adjustment Not Working
- Cortisone (Injection) Not Working
- Darvon Working / Worked
- Helped, but I developed sensitivity to opiates. Hurts my endometriosis/lower abdomen.
- Epidural Injection Not Working
- Fioricet Working / Worked
- Helped in the past, but I developed sensitivity to opiates.
- Flexeril Not Working
- Nah, just felt like I was in a drug hangover the next day.
- Heat Somewhat Helpful
- Same w/ ice packs.
- Hydrocodone Working / Worked
- Kinda worked, can't take them anymore though bc I became sensitive.
- Ibuprofen Not Working
- Not strong enough.
- Naproxen Not Working
- ..but it does help with my endometriosis and interstitial cystitis.
- Physical Therapy Considering
- Tried it a couple years ago with no success, and one day when I'm not so tired I'll try it again.
- Stretching Somewhat Helpful
- TENS Not Working
- Couldn't actually get deep enough into my muscles.
Open Chronic Pain
Treatments
- Chiropractic Adjustment Not Working
- Flexeril Not Working
- Heat Somewhat Helpful
- Hydrocodone Somewhat Helpful
- Lidoderm Not Working
- Marijuana Not Working
- Oddly enough it hurts my lower abdomen and makes it swell up and sometimes makes me throw up. wtf? Anyone else?
- Methadone Not Working
- Had the WORST withdrawal I could even imagine for months and months. Didn't even help my pain.
- Mobic Not Working
- Naproxen Not Working
- Neurontin Not Working
- Oxycodone Somewhat Helpful
- Physical Therapy Not Working
- TENS Not Working
- Topamax Not Working
- Non relief from pain and had severe depression from this med.
- Carisoprodol Working / Worked
- Love it.
Open Environmental Allergies
Type of allergy: Multiple Chemical SensitivityNAET (specific acupuncture) - had almost two years of this treatment and it put me into an 8 year remission. Had a set back though now, but still NOT as bad as I had been!
Open Financial Challenges
PerhapsOneDay hasn’t entered any details for this support group.Open Agoraphobia & Social Anxiety
I've always been nervous, even though I'm outgoing too. I don't like places packed w/ lots of people. I don't like leaving my house alone-so I don't get a lot done. I got better for awhile, but it's back. It's irrational and I want it to stop.
