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About Me
Mel1967
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About Me
Married, Mother of 2 College students and a 3 lb Yorkie named Riley. Diagnosed with Lupus in 1997, Fibromyalgia 2001, Sjorens and Raynauds 2008
Married, Mother of 2 College students and a 3 lb Yorkie named Riley. Diagnosed with Lupus in 1997, Fibromyalgia 2001, Sjorens and Raynauds 2008
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Journal
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Hugbook
Hug
Thanks Mel ... You are so right in every regard. While friends and family do try to understand there just simply is no way of them knowing truly how bizarre and painful this disease really is. Thanks!
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Been doing ok. Been thinking about you and missing our chats. Havent been myself lately. Hope you are doing ok and I wish I could give you a real hug :(. I'll try to email you later when ryan is napping.
xoxo
Flower
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I'm sorry it has been so difficult for you. My manager keeps talking to me about taking advantage of the disability benefits available to me through my company, etc., but I am just not sure. There are days that it is really difficult for me to deal with the pain. I think until the Plaquenil really gets working, if it gets working, I am going to be in "not the greatest" shape every day. I hope it gets better for you. I hope they get the LTD thing figured out. That doesn't seem right that they could label it differently, so that they can not pay you for long term disability.
Hugs.
Chrissy
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Hello, Mel. Yes, I definitely had the extreme itching too years ago. It lasted for about a month. In my case, the doctor figured out later it might have been one of the drugs. Sometimes there is an immediate reaction, and sometimes there is a delayed reaction. In any case, mine apparently ended up as liver damage due to prescription drugs, as a number of drug side effects go. I had extreme hives that looked like huge welts on my body, and all around my mid section, my skin turned yellow-orange. All along my lymph glands turned bright red. One more reason, nutritional therapy won me over. Drugs are absolutely necessary for emergencies, but I just couldn't tolerate all the side effects any more.
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Support Groups
Close Lupus
Mother of 2, Jennifer 21 and Ryan 19, the joy of my life is a 3 lb yorkie named "Riley". I was diagnosed with lupus in 1997, fibromyalgia 2001, raynauds and sjorens 2008.
Treatments
- Azathioprine Somewhat Helpful
- I started imuran in October after being on Methotrexate, I am slowing seeing improvements with this.
- Plaquenil Working / Worked
- Plaquenil is one of those meds that's hard to tell if it helps or not.
- Prednisone Working / Worked
- Absolutely helps!
- Effexor Working / Worked
- I take this for fibromyalgia it helps with the muscle pain.
- Hydrocodone Working / Worked
- There is no way I can live without pain meds as sad as it is.
- Prilosec Working / Worked
- Helps my stomach have lots of GI issues some caused by the meds I take Im sure.
- Synthroid Working / Worked
- To help control my thyroid levels





