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About Me
RSDinme
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About Me
I have had RSD for 11 years.
I have had RSD for 11 years.
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Journal
This entry is private
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Hugbook
Hug
hey K...did you try to chat with me about a week ago?? I saw it come up then disappeared and I am just wondering if it was you or someone else trying to tell me something?? Hugs, V
I’m With You
Lets exchange ideas and support each other no matter what. I need a friend who is going through and understands the pain and frustrations that I am experiencing. I live in the state of Illinois and im starting to think that maybe that is the reason for the lack of medical care that I am getting. If you find a good RSD specialist in your area plz let me know. I am in so much pain im at the point where I think i need to travel and im willing to also. To make matters worse Im taking meds that are not helping. I've been denied a nerve block twice and in the meantime im having physical changes that are happening to me. Lets get a solid diagnosis and get help asap. Thanks for letting me share with you. Tammy
Flower
hey thanks for writing and your upbeat message. you are so sweet and your encouragement means a lot. hope you are hanging in. thanks again karly. warms hugs, carol
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Little Love
I love you so much...you are one special sister and I will alway look up to you even though I am older than you. Lets do the park thing together one day and get our butts out of these houses lol...love ya, V
Rainbow
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Support Groups
Close Reflex Sympathetic Dystrophy
I have had RSD in my face, arms, and back for 11 years. I have tried every type of injection there is for RSD. I have also tried most of medication that is offered for pain or RSD. I had a spinal cord stimulator for about five years. After all this time I figured out that no treatment works forever, every Dr. has a different opinion on the same issue, and you have to find a combo of med's, exercise, and hobbies that you help you make through each day. For every bad day there will be a good one.
Treatments
- Baclofen Somewhat Helpful
- I have been on this for 11 years and don't it works anymore.
- Morphine Considering
- I was just put on Morphine to use with the Oxycodone. I am really freaked out about this one.
- Oxycodone Working / Worked
- For a while this was used to cover the most of my pain. I was taking a very low dose and it soon didn't cover all of pain.
- Topamax Working / Worked
- I love this med but can only take a small does or I cry all the time and my vision get lines in it. The med helps with the burning and issues with weather.
- Walking Working / Worked
- I try to walk everyday regardless of how bad the pain is. I go out some days looking like crap because I have been so sick but I feel better when I get home. Its my way of fighting back. I cant explain the feeling you get after you walk for about it week.
Close Chronic Pain
I have had RSD for 11 years in the left side of my face, left arm and down my back. I got it by yawning one night and my jawing locking opening. In order to close it I punched myself in the face. My jaw was pretty much lock closed and off to the right side. I had several surgeries to try to get my jaw to go back into place and give me the ability to open my mouth again. It took a Pain Management Doctor to fix the problem and tell me what was wrong.
Treatments
- Cymbalta Not Working
- Took once and will never take it again.
- Flexeril Somewhat Helpful
- Wasn't strong enough
- Heat Working / Worked
- I use this from time to time on top of a heating pad
- Hydrocodone Working / Worked
- I have used this for years as a break through pain killer.
- Marijuana Working / Worked
- Worked but I haven't seen a doctor to get a the right way. I should because it has helped me so much.
- Meditation Working / Worked
- Meditation helps me a lot but I have to keep using it. Like now I am too stress out to use it. I can't focus long enough for it to work.
- Methadone Not Working
- I freaked out on this. I saw things that weren't there.
- Morphine Working / Worked
- I just started this and it works good but it makes me really tried.
- Nerve Blocks Working / Worked
- Worked great for years but they don't work forever. Once they stop working for me I had to increase my meds.
- Neurontin Not Working
- This is a very dangerous drug and you need to watch your moods with. I will never take this drug again. Keep in mind there is a law suit going on with this drug right now...
- Oxycodone Working / Worked
- I have been on Oxy for years before it had to be increase. I was taken off and put on Morphine. I honestly think Oxy was a better drug for me because I could focus better.
- Physical Therapy Working / Worked
- Always a great idea when you in pain and taking meds.
- TENS Working / Worked
- Spinal Cord Stimulator changed my life. I was off all meds within a week but with in three years I had to start taking meds again. I wasn't aware that my stimulator wouldn't work forever so I am using it with meds so it will work a longer for me.
- Topamax Working / Worked
- I love this drug but only can take 100 mg or it will make me cry and get a little crazy. They should do something about that side effect.
Open Adoption
I have been with my husband for 20 years and we have never had a child. Because of my illness my doctors feel I should adopt. I have always wanted to adopt a child that needs a home but that doesn't take away the pain of not having a child of my own. My husband is very supportive and totally understands but it hurts. I'll be fine and then I'll just get upset about this.
Open DailyStrength Members Community
To chat and report something
Open Depression
Type: Clinical (Major) DepressionBecause I haven't had one thing go right in months. I am on meds for depression and they do not work. I am sick of not sleeping or laughing
Treatments
- Cymbalta Not Working
- I got sicker then a damn dog
- Effexor Working / Worked
- Can't remember if it worked or not
- Meditation Working / Worked
- It works if you really try and focus.
- Positive Thinking Working / Worked
- This is hard but I am trying
- Psychotherapy Working / Worked
- I finally met someone I can work with (I think). So far so good.
- Support from Friends & Family Working / Worked
- Really works. I can vent or say things that I would never tell my family.
- Trazodone Working / Worked
- I need to take too mucn in order to fall asleep
- Wellbutrin Working / Worked
- I like the way it keeps me wake and my moods are better on this med.
- Writing Working / Worked
- I have a journal now and us it only when I am raging.
- Zoloft Working / Worked
- Trying to change over to it but so far it hasn't worked out.
