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  • About Me

    Image of IUPUI

    IUPUI

    Female, 63
    Indianapolis, IN, USA
    Member since December 8, 2008

    • About Me

      I have nine children and was feeling quite well until about Halloween 2007. I started noticing that my abdomen was rapidly distending to the point that by mid November I almost looked pregnant. I did get medical attention fairly quickly after the onset of symptoms; however, at the end of November was diagnosed with ovarian cancer - stage IIIc. I had horrific complications after my debulking surgery and ended up in a coma in intensive care. My recovery has been long and difficult but I'm doing well now.

      I have nine children and was feeling quite well until about Halloween 2007. I started noticing that my abdomen was rapidly distending to the point that by mid November I almost looked pregnant. I did get medical attention fairly quickly after the onset of symptoms; however, at the end of November was diagnosed with ovarian cancer - stage IIIc. I had horrific complications after my debulking surgery and ended up in a coma in intensive care. My recovery has been long and difficult but I'm doing well

    • Interests

      I have a great family scattered around the country. I love to travel and visit all my children and grandchildren. Additionally, I work in higher education and I enjoy taking classes. It looks as though I will finish a Masters in Higher Education in May 2009. I am also trying to change my diet to a healthier one and I have become someone who exercises regularly (especially swimming).

      I have a great family scattered around the country. I love to travel and visit all my children and grandchildren.

  • Recent Activity

    Recently:

    • 6 journal comments, 3 hugs received, 3 hugs given, 1 journal post

    Today

      Wednesday

      • IUPUI gave Lindaheff a hug 10:15am

        Hi Linda, Thank you for the leg advice. I had another night with the legs aching but did manage to sleep…  

      Tuesday

      • IUPUI gave Lindaheff a congrats 8:30am

        Hi Linda, I had a bit of a "sick" day yesterday - very tired with achy, restless legs. Today…  
      • IUPUI commented on rharris’s journal entry Another day... 8:18am

        Happy birthday to your mom from me, too. Oh these days are always very rough. The pain of loss is still…  

      Saturday

    • Journal

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      Read Journal

    • Hugbook

      Give IUPUI a hug



      • Little Love

        From Lindaheff Tuesday

        Dear Janet
        I`m sending lots of love for your grandbaby, Nadia Rose :)
        I read that you can relieve Restless Legs Syndrome by putting a bar of soap under your sheet. It worked for my niece, while she was pregnant, and may be worth a try! Good luck with your restless legs and kisses for your new grandbaby!
        xxLinda

      • Celebration

        From Lindaheff Saturday

        Dear Janet
        This is the first time I`ve been online due to numerous errands, a trip to my mother`s and Atlantic City. However, you were on my mind today...I was mentioning to my husband how I`ve met this incredible survivor who got her Master`s at IU, teaches engineering and is finishing up her 2nd regime of my much hated carboplatin/taxol. You truly are an inspiration to all of us, and deserve all the good things that are beginning to happen for you, again. It`s amazing how different oncologists have different "schools of thought"(mine won`t allow me to ingest any vitamins, herbs, etc.)You`re approximately 6 months ahead of me in your ovca diagnosis, mine was 5/08 :( Have a wonderful weekend and try to celebrate that you`re here 2 years later and have tackled the BEAST, again!. Lots of love, as always,
        xxLinda

      • Good Luck

        From Lindaheff November 13

        Dear Janet
        I think that it`s terrific that your oncologist isn`t giving you the carboplatin because of your hearing problems... I was annoyed that they made me have 9 treatments of if, when they knew I`d become resistant and was losing hearing. Possibly your doctors are a bit more compassionate :) We`ve had 3 days of rain and are due for a few more, so thanks for your much needed sunshine. I`m sending lots of good luck your way for today`s treatment and a terrific weekend. Lots of love,
        xxLinda

      • Hug

        From Lindaheff November 10

        Dear Janet
        Thanks for you words of encouragement, as always. Initially I had all my blood tests and scans within 2 miles of my house, however MSKCC questions everything and felt that they`d prefer to do their own testing. Today it is cloudy and warm in NJ and I`m hoping to crash soon, but have been watching the passing boats from my deck. I know that sleep is such an important part of the healing process and need it desperately! Try to conserve you energy for Friday`s treament, just think...you`re almost done :)
        Lots of love,
        xxLinda

      • Hug

        From BlueButterfly55 November 10

        Thank you so much for the hug and sweet message!!! They will get better sooner or later I hope!!

      Read Hugbook

    • Goals

    • Support Groups

      • Close Ovarian Cancer

        I was diagnosed with IIIC ovarian cancer November 2007. I had debulking surgery after which I developed a life-threatening blood disorder called disseminating intravascular coagulation. I was in a coma for about 10 days and in ICU for 19 days. All my blood volume was replaced. I emerged from ICU unable to move due to something called critical illness myopathy. I spent 8 weeks in a rehab facility and another 9 weeks with home nursing care. I had various other serious infections.

        Treatments

        Carboplatin Working / Worked
        I was too sick to have anything but carboplatin. I needed blood transfusions after my fourth treatment. My surgical incision was infected and didn't completely close until after all chemo was completed. I also had an intestinal infection called C-Diff (pretty bad stuff); this, too, was worsened by the chemo. Things are fine now. Update: August 2009 CT found two small lesions so more chemo. Currently taking Carbo/Taxol
        Chemotherapy Working / Worked
    • Groups

    • Friends


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