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  • About Me

    Image of SeekerSue

    SeekerSue

    Female, 32, Seeing Someone
    Bozeman, MT, USA
    Member since December 7, 2008

    • About Me

      I was diagnosed with Chronic Fatigue/Fibromyalgia around 2006, but had symptoms at least three years before that. I have been unemployed since the beginning of 2007 due to my health; I was previously a massage therapist for eight years, as well as a student of psychology. I love being creative, travelling, becoming more conscious of myself and the world around me and connecting with like minded people. My goal is to find satisfaction in living, regardless of my health status.

      I was diagnosed with Chronic Fatigue/Fibromyalgia around 2006, but had symptoms at least three years before that. I have been unemployed since the beginning of 2007 due to my health; I was previously a massage therapist for eight years, as well as a student of psychology. I love being creative, travelling, becoming more conscious of myself and the world around me and connecting with like minded people. My goal is to find satisfaction in living, regardless of my health status.

    • Interests

      Knitting, reading, music, dialogue and communication, friendship, spirituality, sustainability

      Knitting, reading, music, dialogue and communication, friendship, spirituality, sustainability

  • Recent Activity

    Recently:

    • 4 hugs received, 3 hugs given, 1 discussion post

    Yesterday

    • SeekerSue and SkyLineAndSmiles are now friends 4:27pm

    Wednesday

  • Journal

    • A little loss

      Mood November 12, 2009 2:53pm

      Not much to report here, but any progress is still progress, so I thought I'd report it.

       

      I rarely weigh myself as we ditched our scale …

    • A rant - feels so good!

      Mood October 24, 2009 11:29pm

      Hey all,

       

      I just posted this rant to a thread in the fibro group.  It felt so freakin' good to get it out that I thought I would post it …

    • My purpose in life

      Mood October 21, 2009 6:49pm

      Last night something happened to me that I'm not sure I can express in normal communication.  I'm going to give it a shot though.  …

    • Jealousy all over the place

      Mood October 16, 2009 4:11pm

      In the last while I've been feeling jealous frequently, and this is very unusual for me.  I know people say that jealousy is a bad thing, …

    • This entry is private

    Read Journal

  • Hugbook

    Give SeekerSue a hug



    • Chocolate

      From snapcracklepop Tuesday

      Saw you were feeling bad today so I thought I'd drop by and say hello with some chocolate.

    • Chicken Soup

      From momknits4u Tuesday

      Hnag on there SeekerSue. If your doc doesn't see this as an issue, as always- get a 2nd opinion. My fatigue has never been that bad since I had Mono as a Senior in HS. My Fibro symptoms began about the same time. Could you have something unrelated going on? It's worth checking

    • Hug

      From Lavonn Monday

      Thank you for saying what I was trying to say with much more tact and grace.:) I hope you are hanging in there it sounds like you are.

    • Hug

      From SydneySmithAUU Sunday

      Hey I support womens rights etc too so I like your icon a lot. I hope you have an ok day. ;hug:

    • Hug

      From russi October 29

      hello sue i was jus thinking of you

    Read Hugbook

  • Goals

    Progress

    0 %

    Current Weight (Lbs)
    247.8
  • Support Groups

    • Close Fibromyalgia

      I was diagnosed with fibro in 2007. Doing my damnedest to get healthy.

      Treatments

      Gluten Free Diet Working / Worked
      The majority of my gut problems have disappeared. No more chronic bloating, gas, or abdominal cramping.
      Magnesium Working / Worked
      Helps me relax and sleep.
      Reading Somewhat Helpful
      From Fatigued to Fantastic is a wonderful book that simplifies things rather than making things more complicated as Ive found other fibro books to do.
      Research Somewhat Helpful
      Learning about what has been effective for others is always a good thing. My fave website is www.knowfibro.com
      Vitamin B12 Too Soon to Tell
      I do it on the advice of my doc, but I'm not sure it's effect. I get my shots done at the same time as a Myer's Coctail, and one or the other (or both) have pretty much stopped some very severe headaches I was getting early in the year.
      Yoga Somewhat Helpful
      Can help pain and fatigue tremendously, but can be extremely painful without good instruction. (Iyengar Yoga was the style I tried.)
    • Close Celiac Disease

      Going gluten-free has made a huge difference in the health of my gut, as well as decreasing inflammation in the rest of my body.

      Treatments

      Avoid Certain Foods / Chemicals Working / Worked
      Dairy-Free Diet Working / Worked
      Gluten Free Diet Working / Worked
    • Open Chronic Pain

      I have had widespread pain from Fibromyalgia. I also have a history of migraines, and I get some back and neck pains that may not be part of the fibro.

      Treatments

      Breathing Exercises Somewhat Helpful
      Chiropractic Adjustment Somewhat Helpful
      Marijuana Somewhat Helpful
      Massage Somewhat Helpful
      Meditation Somewhat Helpful
      Physical Exercise Somewhat Helpful
      Physical Therapy Somewhat Helpful
      Stretching Somewhat Helpful
      Can provide relief but sometimes aggravates or triggers more pain.
      TENS Somewhat Helpful
      Yoga Somewhat Helpful
      Can relieve pain but can be very painful during the process.
    • Open Depression
      Type: Clinical (Major) Depression

      I experienced a deep lasting depression in my teens that lifted with very intensive psychotherapy, support groups, meditation, and the resolution of some major health and family issues. I am now experiencing another chronic illness and have found as a result that some of the time I feel depressed again. I expect I will be able to overcome it again, and thought it would be a good idea to have a little support.

      Treatments

      Cognitive Behavioral Therapy Working / Worked
      Elavil Not Working
      Took it in the past; wasn't helpful.
      Meditation Somewhat Helpful
      Paxil Not Working
      Took it in the past; it didn't help.
      Positive Thinking Somewhat Helpful
      Prozac Not Working
      Took it in the past; it didn't help.
      Psychotherapy Working / Worked
      Support from Friends & Family Somewhat Helpful
      Writing Somewhat Helpful
      Zoloft Not Working
      Took it in the past; it didn't help.
      Physical Exercise Somewhat Helpful
    • Open Financial Challenges

      Treatments

      Budgeting Somewhat Helpful
      Holding a Garage Sale Somewhat Helpful
      Reading Somewhat Helpful
      Just like alot of us I wasnt taught much about money management growing up. Reading helps me get some ideas about how other people manage money even if dont do everything they suggest.
    • Open Career Changes

      I have been unemployed since 2007 due to health issues. I was a massage therapist for 8 years and really enjoyed working with people but the physical demands of the job were too much for me. I hope to become a social worker.

    • Open Chronic Fatigue Syndrome

      Fibro pain has been the more obvious symptom of my illness than the chronic fatigue part, but now that my pain is receding, I am finding fatigue to me my next biggest obstacle.

      Treatments

      Pain Management Clinic Somewhat Helpful
      Physical Exercise Somewhat Helpful
      Somewhat difficult to do on alot of days due to pain, but when I can it helps me get better sleep.
      Sleep Somewhat Helpful
      I have found that waking naturally (no alarm or outside thing waking me), and putting myself to bed before midnight have both helped me to feel more rested. Not always easy, but they help when I can do it.
    • Open Migraine Headaches

      I rarely get migraines now, but had very frequent severe migraines as a teen. I would be happy to support others in any way I can.

      Treatments

      Breathing Exercises Working / Worked
      Diaphragmatic breathing allowed me to release. After learning this technique, combined with meditation/attention to how the body felt, I was able to break the cycle of frequent recurrent migraines.
      Fiorinol Not Working
      Imitrex Working / Worked
      Inderal Not Working
      Meditation Working / Worked
      Learning to pay attention to the sensations in my was a key part of getting rid of migraines. With the help of a mentor I was able to stay present during a migraine rather than trying to block them out. As a result the repetitive cycle of migraines was broken and I only get them very infrequently now.
      Music Somewhat Helpful
      I have danced myself through more than one migraine. Both Nine Inch Nails and New Order have been soundtracks to the massive energy coursing through my head.
      Naproxen Not Working
      Physical Exercise Not Working
      Psychotherapy Working / Worked
      I thought it would never work but my therapist had experience with migraines and helped me to work through the psychological issues that were contributing to the migraines.
      Tylenol Not Working
    • Open Bisexuality

      I am here to support others in coming to terms with bisexuality, and to get support if I need it. I am quite comfortable with being bi, and belonged to a great bi support group in Toronto.

      Treatments

      Support Groups Somewhat Helpful
      I dont really consider bisexuality as something that needs treatment per se but I have found meeting other bisexuals to be very validating.
    • Open Irritable Bowel Syndrome (IBS)

      I've had bad cramping and abdominal pain since my teens. It became much worse in the last 5 years or so.

      Treatments

      Avoid Certain Foods / Chemicals Somewhat Helpful
      No gluten for me! I limit other foods as well, including yeast, dairy and soy.
      Magnesium Somewhat Helpful
      Helps relax muscle tissue which can relieve constipation.
      Probiotics Working / Worked
      Primal Defense helped me from the very first day I took it. I will probably take a low dose for life. It's worth it!
      Psyllium Somewhat Helpful
    • Open Hypothyroidism

      Eltroxin helped to lift me out from feeling mentally "underwater". I had no idea I had hypothyroidism until I underwent various testing and was diagnoses with fibromyalgia.

      Treatments

      Synthroid Working / Worked
    • Open Anxiety

      Treatments

      Ativan Not Working
      Breathing Exercises Somewhat Helpful
      Inderal Not Working
      Meditation Somewhat Helpful
      Paxil Not Working
      Physical Exercise Somewhat Helpful
      Positive Thinking Somewhat Helpful
      I would say for me the positive thinking that works best is focusing on what I want to create rather than on what I don't want. Just thinking happy thoughts has never worked for me.
      Valium Somewhat Helpful
      Writing Working / Worked
      Zoloft Not Working
      Dancing Working / Worked
      Often helps me stop obsessing and loosens me up!
      Music Somewhat Helpful
      Fairly good on its own but can be even better when combined with DANCING!
    • Open Diets & Weight Maintenance

      Treatments

      Eating Healthier Foods Somewhat Helpful
      Eat Less Somewhat Helpful
      Weight Watchers Somewhat Helpful
      Physical Exercise Somewhat Helpful
      Personal Trainer Somewhat Helpful
      I generally found personal training accelerated weight loss, but have also exacerbated my fibromyalgia and triggered black-outs and muscle spasms.
    • Open Environmental Allergies

      I am uncertain if I have any allergies, but I do find I react to some shampoos as well as some things in the air.

    • Open Lesbian Relationship Challenges

      Have been in a relationship with a wonderful woman since January 2006. I've joined this group to get support in rough times, and to support others if I can.

    • Open Loneliness

      On occasion I feel isolated or lonely. I enjoy my own company - being alone isn't the problem. What I want is to have more connection with people that I can relate to.

    • Open Food Allergies

      Treatments

      Avoid Certain Foods / Chemicals Somewhat Helpful
      Removing foods that I know I am sensitive to has helped. There are still some things that can make me sick though that I haven't been able to identify.
    • Open Obesity

      I'm looking for ways to get healthy, including losing weight so that will be in a healthy range.

      Treatments

      Avoid Certain Foods / Chemicals Working / Worked
      If I follow the Weight Watchers core plan (which mostly eliminates a number of foods), I lose weight fairly reliably. My difficulty is that usually I want to eat those foods again after a period of time without them.
      Physical Exercise Not Working
      Working out and using a trainer have helped me to lose weight in the past, but I have alot of trouble doing that now due to health issues. At present I can walk and do yoga, but I haven't found that they help me lose weight.
      Weight Watchers Working / Worked
      I have successfully lost weight using both Flex and Core programs, but I have always gained it back and more.
    • Open Healthy Eating

      I am always on the lookout for ways to improve my health through diet. I am gluten-free.

    • Open Food Addiction

      I turn to food at times to decrease anxiety or mute negative feelings. I want to learn how to eat in a way that is healthy and satisfying. I would also like to enjoy my food and have it be a pleasant part of my life, not something that I need to obsess over.

    • Open Anger Management

      I have been getting angry frequently, mostly with my partner. I want to learn to deal with the issues beneath the anger, as well as learn what to do with my anger when it surfaces. I don't like being an angry person!

    • Open Codependency

      I am exploring codependency in the hopes of creating a fulfilling life for myself.

      Treatments

      Reading Somewhat Helpful
      Talking Somewhat Helpful
    • Open Arthritis

      I was diagnosed with osteoarthritis, but x-rays show no joint damage. I'm hoping to prevent that from happening.

      Treatments

      Anti-Inflammatory Diet Too Soon to Tell
      I have read alot about anti-inflammatory diets, but haven't done one on it's own. (I did a candida diet that I think included elements of this.)
      MSM Working / Worked
      It has decreased the aching in my joints alot.
      Naproxen Somewhat Helpful
      It helps somewhat. I don't take it often because I am unsure of negative side-effects.
    • Open Physical & Emotional Abuse

      Treatments

      Group Therapy Somewhat Helpful
      Leave Somewhat Helpful
      Music Somewhat Helpful
      Psychotherapy Somewhat Helpful
    • Open Back Pain

      Treatments

      Bedrest Working / Worked
      Chiropractic Adjustment Somewhat Helpful
      Ibuprofen Somewhat Helpful
      Naproxen Somewhat Helpful
      Physical Exercise Somewhat Helpful
      Physical Therapy Somewhat Helpful
      Relaxation Somewhat Helpful
      If I can't "come down" from the stress of the day, my sleep just isn't as good. Deep breathing, music, or reading a good book can both help.
      Stretching Somewhat Helpful
      TENS Somewhat Helpful
      Yoga Somewhat Helpful
      Ive found Iyengar Yoga very helpful at times although sometimes it aggravates my problems too. I had one program that was designed for my specific needs and it worked best. The general programs are usually too much for me.
    • Open Insomnia

      Treatments

      Trazodone Too Soon to Tell
  • Groups

  • Friends

  • Fanned Experts

    Dr. Sharon Orrange
    Primary Care Physician

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