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  • About Me

    Image of Krow

    Krow

    Male, 34
    Wisconsin Dells, WI, USA
    Member since December 5, 2008

    • About Me

      I'm not trying to be a jerk but, I'm going to delete friends that aren't attempting to keep active. I'm not comfortable with everyone have access to my "locked out" journal entries. Other than that: I'm affected and defined by a great extent by my chronic pain from medical conditions. But, I try to stay distracted. I attempt to maintain a blog: www.a-seriousnote.blogspot.com

      I'm not trying to be a jerk but, I'm going to delete friends that aren't attempting to keep active. I'm not comfortable with everyone have access to my "locked out" journal entries. Other than that: I'm affected and defined by a great extent by my chronic pain from medical conditions. But, I try to stay distracted. I attempt to maintain a blog: www.a-seriousnote.blogspot.com

    • Interests

      Reading, Movies, Politics, RPGs,

      Reading, Movies, Politics, RPGs,

  • Journal

    • This entry is private

    • This entry is private

    • Closer

      Mood February 4, 2009 1:44am

      I have noticed, at times in my life, that things are usually pretty straightforward in regards to obtaining an item. "Shit, where's the …

    • Chiari Do's and Don't's Revisited

      Mood January 28, 2009 3:43pm

      Just putting this back on my journal for those who need it. Copy and paste it into a word processing application and print it out. You'd be …

    • This entry is private

    Read Journal

  • Hugbook

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  • Support Groups

    • Close Arnold-Chiari Malformation

      I was diagnosed after about 4 years of complaints to doctors after a car accident when all of the symptoms started occurring. Now that the problem has been found, I'm only treating the symptoms, when the doctors believe me that I'm in need of help. I refuse to have the decompression surgery unless I can no longer cope with the symptoms.

    • Close Chronic Pain

      I was in a car accident in 2000. After several years and several doctors, I finally got one to do an MRI. I was found to have an Arnold-Chiari Malformation which caused a lot of problems and a herniated disc for which I've had a discecomy an then a fusion. Despite the two surgeries, I still have the same symptoms and now a few more to go along with them.

      Treatments

      Chiropractic Adjustment Somewhat Helpful
      This is helpful at times. Other times, the doctor just jumps in and makes treatment without finding out any facts about my physical problems. The last one could have killed me.
      Flexeril Not Working
      This did not work at all for me. Another one they try to pass off as being helpful is Skelaxin. That isn't very helpful either.
      Heat Not Working
      Never worked, never will.
      Hydrocodone Working / Worked
      It works for acute pain if I've not taken it a lot recently. I build up a tolerance to this very, very quickly.
      Methadone Too Soon to Tell
      I just started taking 5mg 2 times per day. It's only been a couple of days and so far I haven't noticed any benefit - just increased fatigue.
      Morphine Working / Worked
      I had been given morphine post-surgery. It worked pretty well.
      Naproxen Working / Worked
      It's just an anti-inflammatory. I don't think anyone can feel any benefit from it. It either helps or it doesn't.
      Neurontin Somewhat Helpful
      I was on neurontin 1200 mg 3 times per day for a few years. It didn't seem to work at the time. But when I stopped, I noticed that I didn't have it. I'm started taking it again and am at 800mp 4 times per day.
      Oxycodone Working / Worked
      Percocet/oxycodone usually works for acute pain, if I haven' taken it a lot recently. I tend to build up a tolerance to it quickly.
      Physical Therapy Working / Worked
      Doctors are always quick to push PT, thinking that people just aren't active. The truth is, I've always been fairly active. I've never noticed any benefit from physical therapy. In fact, the increased activity always makes things worse.
      Fentanyl Not Working
      I cant take the side effects of the patches. Within 12 hours of applying one I have to remove it because I feel like Im dying.
    • Open Depression
      Type: Clinical (Major) Depression

      I have had bouts of depression for a majority of my life, though I've usually forgone treatment. Occasionally, I do actually take medication for it, or speak with a professional. But usually, I just try to live with it.

      Treatments

      Effexor Not Working
      I used this for a while but stopped. Not only was it not working, but I couldn't stand the sexual side effects of it.
      Elavil Not Working
      I had taken this for a few years at several doses. It was like a sugar pill.
      Paxil Not Working
      I had heard good things of this but never received any benefit.
      Support from Friends & Family Not Working
      I've never been able to include those around me with the depression I've felt. It has always seemed to me that if I did, it would change our relationship.
      Trazodone Not Working
      This was a disaster. I was not able to go on any type of regimen because I had an allergic reaction. My blood pressure bottomed out.
      Wellbutrin Not Working
      I attempted to take this, not for depression but to try to quit smoking. I had an allergic reaction giving me hives on like 75% of my body. It wasn't a pleasant experience.
      Writing Not Working
      I attempted to do this in lieu of institutional treatment. It didn't work because I didn't feel comfortable having my thoughts on paper where my friends and family could find it. Well, that and the fact that I've never been able to stick with any task.
    • Open Insomnia

      My insomnia became a real problem starting in 2000 following a car accident. Though, I'd had a very hard time keeping any type of normal sleeping schedule going all the way back to 1989..or even earlier. Now, it's to the point where I just don't sleep without medication, period. I'd get like 1-2 hours. As it is right now, with Ambien, Gabapentin, Methadone, and Benedryll. Still, I get like 5 hours of sleep at the most. I get hallucinations and then blackouts before sleeping now.

      Treatments

      Ambien Working / Worked
      It does help to keep me asleep longer, relatively speaking. However, the hallucinations aren't good - though they may be partially blamed on the other medications I take as well.
      Counting Sheep Not Working
      One of the more ridiculous concepts. I hope it actually helps someone.
      Lunesta Not Working
      The perceived weakest of all of these. It did nothing. I did like the commercials though.
      Music Somewhat Helpful
      Music can sometimes relieve the tinnitus enough ...and can help me take my mind off of my social and personal problems enough to sleep a little. Good distraction.
      Pamelor Not Working
      Very weak. Wasn't worth the time or money.
      Reading Not Working
      I love to read too much. So, this was rather counter-productive. I'd spend like 5 hours reading before attempting to sleep as a real attempt.
      Rozerem Not Working
      It didn't seem to work. I felt it was too weak.
      Sonata Not Working
      It seemed very, very weak. I don't feel it helped at all.
      Trazodone Not Working
      My blood pressure bottomed out on this med. I had to be taken to the hospital to take care of the allergic reaction.
      Benadryl Working / Worked
      One of the most helpful sleeping medications on the shielf. This works better than many of the prescriptions ones for me.
    • Open Kidney Stones

      I was told that I likely had kidney stones just before I went through a surgery - a little over a year ago. But, the doctor "put it on the back burner", as he said. I've recently gone to a new doctor asking for a diagnosis. It was proven that I do have them, between 1-3mm. Not too big. I've passed 4 or 5 of them without any problem. I'm joining to try to learn more about kidney stones and what everyone else has gone through.

      Treatments

      Avoid Certain Foods / Chemicals Too Soon to Tell
      Since my doctor didn't do anything or give me any info about kidney stones, I read up and stopped drinking coffee, believing that to be my problem. After about 5 months of going without coffee, I had to start drinking it again or risk going crazy. I love coffee - and I'm not ashamed to admit it!
    • Open Loneliness

      I don't know if this is the right support group for what I'm feeling. I feel lonely. But, most of the time that I'm with people, I still feel isolated and that I don't belong there.

    • Open Syringomyelia

      I have an Arnold-Chiari Malformation which caused this Syrinx to occur. I refuse to have a surgery done because I don't feel the benefits outweigh the risks. If you'd like to discuss this, let me know. But I will not have this surgery until it is clear that it is absolutely necessary.

    • Open Tinnitus

      I have had tinnitus for as long as I can remember - at least to early teen years. No doctor I have ever had has attempted to treat it. They either don't ask or disregard my statements about it.

      Treatments

      Neurontin Not Working
      I've been on Nuerontin for several years. Even at maximum dosage sustained for a couple of years, it did not help.
      White Noise Not Working
      I have attempted to use "white noise" but it has never worked.
    • Open TMJ

      I broke my jaw and damaged the jaw joints in 1990. I've had very bad jaw pain since then with no real relief other than a stronger pain somewhere else on my body. In addition to the pain, my jaw clicks, pops and locks.

      Treatments

      Mouthguard Not Working
      While this did stop me from grinding my teeth or biting down in my sleep, it caused the same amount of pain from pulling my jaw forward.
    • Open Migraine Headaches

      I've had migraine headaches since a car accident in 2000. The headaches are likely being caused by the Chiari Malformation. They have increased dramatically after a recent surgery.

      Treatments

      Caffeine Working / Worked
      I love coffee and it helps get rid of headaches. But, I have to stop drinking it because it's interfering with my treatment of kidney stones and because it causes acid reflux for me giving me a sore throat.
      Excedrin Working / Worked
      It worked a to a small extent sometimes.
      Maxalt Working / Worked
      This seemed to work a little. But not as much as I'd hoped.
      Naproxen Not Working
      Doesn't work
      Tylenol Not Working
      Too weak. This wouldn't work to cure anything.
    • Open Self-Injury

      I have not injured myself in 9 years. Recently, all of the things that kept me from doing it before have left the playing field. I have my tools out and sharpened. And I don't have much will to speak of.

      Treatments

      Group Therapy Not Working
      Had this after lock up....didn't work
      Outpatient Treatment Program Working / Worked
      I was discharged from it within 4 minutes.
      Psychotherapy Not Working
      one doctor was hitting on me....he's in jail for it. Other doctors said I didn't have a problem.
      Red Marker Not Working
      All this did was give me a stencil by which to cut.
      Rubber Bands Not Working
      never, ever worked
      Squeezing Ice Not Working
      not quite the cut I'm looking for
      Talking Not Working
      If they didn't know what drove me here...they sure as hell can't drive me out.
      Tattoos Working / Worked
      I love ink. It helps so much with cravings. Let alone the bonus ink...and it covers your past scars.
    • Open Anxiety

      Krow hasn’t entered any details for this support group.
  • Groups

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