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About Me
michelleU
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About Me
I am married , 46 years old and my husband 53 yrs old has been diagnosed with multiple myeloma. It has been 2 years now, with lots of treatments and 2 stem cell transplants. He is in remission, but has different side effects and GVHD. We have 3 children and grand daughter 9 months. I am a Psychiatric nurse at a hospital. He doesn't work anymore, but stil keeps active, he loves to hunt.
I am married , 46 years old and my husband 53 yrs old has been diagnosed with multiple myeloma. It has been 2 years now, with lots of treatments and 2 stem cell transplants. He is in remission, but has different side effects and GVHD. We have 3 children and grand daughter 9 months. I am a Psychiatric nurse at a hospital. He doesn't work anymore, but stil keeps active, he loves to hunt.
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I’m With You
You are a wonderful and caring carer! Cath
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Ray of Sunshine
Thanks for your update of your husbands history. I have found that the sweating eased in winter, but in summer it increased. Now I'm facing my second summer of sweating -- I didn't have it for the first 4 years - and would love to find a way of stopping it! Sometimes in winter, when I had a head of 'wet' hair, I could say that I'd been caught in a rain shower to explain my look, but in summer - particularly in drought ridden Australia - my head can't be wet from RAIN!! If you hear of any form of treatment, please pass it on. Many thanks for your support, Cath
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Hi Michelle. Welcome to the group, I know how difficult it is to have to deal with MM I have been through it all. I know how terrible it was for my wife to see me when I was so close to death following my transplant and the complications that occurred. It was then I decided that I had had enough and would recover, not just for me but for my wife who suffered almost as much as I did, but in a different way. MM is not an easy cancer but I am slightly different from most people on this group because I beat it and when it returned after the transplant I fought it myself, drawing on all I knew about energy and healing. In January 2000 my cancer disappeared and has not been back. I try to help others and have some quite radical views; some might say that my cure (admitted by my oncologist) is anecdotal. Doctors find it hard to accept what is not written in text books. I broke the mould with mm, it will not be back, I am a healer and a geomancer and work with energies that doctors know nothing about. See my blog www.thegeordiehealer.blogspot.com and you will get a sense of what I do. I never feared mm nor did I believe it was incurable. Fear and expectation given by doctors kill. If I can be of any help at all I am always around, one of my tasks is to help wherever I can. Once again, welcome to the group. David
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Michelle, I'm a friend of Muriel's (MAC22) and I have MM. I just wanted to say welcome and if I can be of any help, don't hesitate to ask. I've had every side effect known to man from my treatments. While I haven't worked in nursing in years, my wife and I both keep up with all the current studies and treatments for MM. Welcome aboard. Terry
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Thank you for the 'friend' request. I am sorry to hear you're now a member of our club..sounds crazy when I write that..yet true. No doubt with your experience you will be able to help others as well...welcome. Muriel xox
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Support Groups
Close Multiple Myeloma
Stage: IIIMy husband has multiple myeloma and has had 2 stem cell transplants
Treatments
- Chemotherapy Working / Worked
- several bouts of chemo IV and also 96 hours of continuous , 5 different types, many side effects, but it put him in remission
- Dexamethasone Working / Worked
- Yes it worked, lots and lots of side effects, never saw his neck that big ever and many mood changes
- Revlimid Working / Worked
- He was on this and it seemed to work ok
- Thalidomide Working / Worked
- It did work, Neuropathy is a terrible side effect.
- Zometa Working / Worked
- Seemed to work, he hasn't broken any bones. He doesn't take this anymore, but did get IV at the clinic every month
