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  • About Me

    Image of InnocenceLost

    InnocenceLost

    Female, 46
    Home, CA, USA
    Member since November 26, 2008

    • About Me

      Trying to find myself again...

      Trying to find myself again...

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  • Journal

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  • Support Groups

    • Close Fibromyalgia

      Greetings all... My story in 500 characters? Wish that was possible :) Four years ago my world was turned upside down. Still trying to find a new way to live in it. The reflection in my mirror is a stranger. I miss my smile, I miss my life. Every day is just another day of the same random symptoms and I'm no longer amused with the 'I wonder what body part will hurt today'. I'm so tired & I don't want to play anymore yet this game never ends. But I am stubborn so still I hope...

      Treatments

      Acupuncture Working / Worked
      Going to try this, it worked when i herniated a disc in my neck long ago so I'm 'cautiously optimistic'
      Cyclobenzaprine Working / Worked
      Worked somewhat but Soma worked better... both increase fatigue.
      Cymbalta Not Working
      Switched from Effexor, at least was able to cry again which was better than screaming on the inside & being numb on the outside.
      Duragesic Patch Working / Worked
      This has worked the best for pain especially in the morning since it's already in my system when I wake up but my dr doesn't like my RX plan which requires mail in 3 month supply for 'maintenence meds' and wont cover it month to month so guess I'll look forward to the lovely gift of decreased pain relief for the holidays.
      Effexor Not Working
      Stopped to try Cymbalta since it was supposed to help with pain.
      Heat Working / Worked
      Helps somewhat with back pain.
      Morphine Working / Worked
      Helped with pain but yucky side effects, nausea, increased fatigue, vision problems.
      Neurontin Not Working
      Weird very scary dizzy vertigo type side effects.
      Provigil Working / Worked
      The only thing thats helped with the fatigue.
      Imitrex Working / Worked
      The only thing that gets rid of the migraines this wonderful syndrome has graced me with.
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