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vonnyzzz 
11:32am
narcolepsy and cataplexys seems to getting worse i cant cope with the sleepiness it totally controls my life.
Since leaving my job 8 months ago i am slowly withdrawing from society, i dont want to go out,
dont want to really talk to people, i went to the dentist yesterday and i felt so anxious about being somewhere un familiar, i dont know where i am heading and dont know how to help my situation, wokling isnt a option at the moment, i spend alot of time on my own in the house most days i know this is not healthy especially when i am prone to anxiety issues.
My sleepiness is beginning to make me depressed, i always feel unwell and struggle to do every day chores. I dread to see how i will be in another year unless i get some help from someone or maybe its just down to me to sort it.....but how????
Comments
If your meds aren't helping, you need to try something else. What about your dog, can she make you feel better? If you play with her,brush her, and just focus on her maybe it might take your mind off of being so sleepy.
cheri1216
Since I got onto this site I have always appreciated "that girl, Vonny's" honesty. Now I feel like you are really a friend "across the pond". I had said in one of my journal entries that I feared not working because I knew I wouldn't well. I have at times felt myself pulling away from friends who although they are kind, I know don't get it and certainly don't want to hear about "my disease" all the time...You had said a while back that your wouldn't go back to the doc...because of the awful experiences...I don't know how your healthcare system works but don't give up on all docs yet...we need meds to feel better...that is just the reality of the chronic disease...you deserve the right meds. You deserve a doc who will listen and work with you. It ok to feel like giving up...just give it a time limit...recharge and get back out there and fight for yourself. If you can't muster the strength to fight for you -remember that you are fighting for all of us...helping make the medical community pay attention and learn something! I find reading the patient stories if other ns and especially of kids and teens helps motivate me...but yes, allow yourself to pet your dog and sit in your garden...give into it for a while...then back on that horse! I so understand fearing the unknowns of the future...I fully expect you to be there to light a candle under my tush during times when I hit bottom. Don't forget!
Marilynliz
From a nutrition standpoint.. when you start getting tired, maybe try to eat some meat by itself (no carbs). The amino acids will be stimulating to the brain and thus keep you awake. Just something to try :)
nikovdh
I am totally the same way. *hugs* I hope things get better for you. And, if anything (drugs or otherwise) start helping you, let me know, too! Haha.
Anyway, hope you're alright...
MeGoobie