Join Now
tincup 
2:03pm, February 13, 2009
On Monday my daughter had her appointment with the blood specialist. Her blood levels were o.k. (not back to the normal yet), so she didn't have to get any shots. The doctor said things should continue to improve now & changed my daughters schedule to coming in every other week for blood test, for 4 weeks & then if everything is good she will only have to go in once a month. After practically living there for the past 3 months, this is such a huge relief!
My daughter is improving rapidly now. She has alot more energy, we went to the Cleveland zoo on Tuesday & then to Pittsburgh for a college interview & then did the Ducky Tour & rode the incline on Wednesday. We were both whipped, but beforehand she wouldn't of been able to do either of those things. Her appetite is also improving, her gums & mouth are finely healed up & she isn't having as many nose bleeds. So all is improving!
Next Thursday we go to Pittsburgh to see the new liver specialist. I doubt that we will gain much from doing so, as we have been told that all the clinical trials for the new tx are now closed. So as far as getting her treatment, I think we are going to just have to wait until it hits the market. However we are shopping for a new doctor, so we hope that we like this doctor better because we are not going back to our previous one .
Comments
I pray for your little girl everyday. She is so brave. When I start to feel sorry for my little BreAnna I just think of what your baby has already been through and know we have been blessed. It sounds like she is on the road back to recovery and maybe you can keep her healthy till the new drugs hit the market. Someone said in about a year or so... Sure hope so because that is what we are waiting for too.
breannasmommy
all sounds good and you never know there are always new trials out there
Barb99999999
Good for her, it was just a matter of time in order for her to get well, now there you go.
There are studies opened, in fact I have posted one that is due to start anytime now.
But maybe a good break for her, is the best way to go at this time.
Love & Respect,
Mckenzie
One day at the time.
Mckenzie
Glad to hear she is getting better every day. I think of you all a lot! Good luck with the new dr.
rbm
So glad things are looking up
Patmh