Man with no eyes
March 25, 2009 10:03am
I found myself sick of myself again yesterday. I am one of these sick people who feels guilty for complaining, like I should be increasingly …
kvb927
7:46pm, January 30, 2009
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About Me
kvb927
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About Me
Well, I started out on this website when I suspected I had acromegaly. My situation has evolved since then. I was diagnosed with acromegaly and Cushing's disease in December 2008 after suffering for at least four years with endocrine issues. I had surgery to remove three pituitary tumors in January 2009. I have hypothyroidism and hypogonadism. I am also here about another brain tumor in my family, but am a lot more shy about that, and will let people know as I get to know them and as I learn more about the situation. Through all of these crisises, I have become a better support for others as well and am more than glad to do so.
Well, I started out on this website when I suspected I had acromegaly. My situation has evolved since then. I was diagnosed with acromegaly and Cushing's disease in December 2008 after suffering for at least four years with endocrine issues. I had surgery to remove three pituitary tumors in January 2009. I have hypothyroidism and hypogonadism. I am also here about another brain tumor in my family, but am a lot more shy about that, and will let people know as I get to know them and as I learn more
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Interests
My dog, Gypsy; being outside; writing
My dog, Gypsy; being outside; writing
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Recent Activity
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Journal
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Could be worse...
January 28, 2009 12:08am
...the most comforting statement. I am fighting self-pity, to live with perspective. Here is me - walking, thinking, talking, loving, …
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How to be sick...
January 26, 2009 8:07pm
I guess I am learning skills I never hoped I would need. I feel like I have come so far, but still have no idea how to be a sick person. …
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Post-op
January 24, 2009 11:32pm
I cannot believe I finally had my surgery. It was almost exactly one year ago that I first learned I had a pituitary tumor. It was …
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Hugbook
Flower
Happy Easter, Happy Spring!
I’m With You
Hi, I SO related to your topic about showering! I dread it too- it's weird how much people do think alike- we think we are alone in how we feel but it isn't the case. Take care :)
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Little Love
Hope you are having a good weekend and that your spirits are good :-) Rose
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Hug
How are you feeling? How are things going? Are you having benchmark moments of noticing improvements yet? I hope so. Hugs, Rose
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Little Love
Thinking of you and sending a little love your way, Rose
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Photos
kvb927 hasn’t uploaded any photos yet
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Support Groups
Close Acromegaly
Still testing...
Close Brain / CNS Tumors
Type: OtherDec. 08 - Stepfather DXed with brain tumor Dec. 08 - myself DXed with acromegaly and Cushing's disease from pituitary tumor
Open Hypothyroidism
I have had thyroid issues for years. I was finally diagnosed with secondary hypothyroidism last year, then came to find that I also had nodules. I am still trying to find the right treatment for me.
Treatments
- Synthroid Somewhat Helpful
- I think Levoxyl took me a step up from "hanging on," but I definitely need something else.
Open Infertility, Secondary
I was originally diagnosed with hypothalamic amenorrhea. Later, I was diagnosed with Cushing's disease and acromegaly - both of which cause infertility. I have not had a period in well-over three years. The only thing that made it happen was the birth control pill - clearly that won't make me fertile. I am looking forward to making connections here.
Treatments
- Estrogen Patch Working / Worked
- It took away my night-sweats, but am not sure if it is doing anything else for me.
- Progesterone Working / Worked
- I use it, but it does not induce a cycle for me.
