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About Me
Lindaheff
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About Me
It`s been a year since I was devasted by the diagnosis of OVCA. My CA 125 numbers were "off the chart" at 7500. Since then I`ve had a total hysterectomy. debulking and have been on chemo since August. Currently my CA125 levels are at 24, which are in a normal range of 0-35
It`s been a year since I was devasted by the diagnosis of OVCA. My CA 125 numbers were "off the chart" at 7500. Since then I`ve had a total hysterectomy. debulking and have been on chemo since August. Currently my CA125 levels are at 24, which are in a normal range of 0-35
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Interests
My passion is sailing, I race sailboats from April through November. I love skiing and was an avid runner.I truly miss my running, as I used to run 4 miles a day. Presently I`m struggling to begin running again. Lately, I`ve been trying to stay fit by using my elliptical trainer, treadmill, and stationary bike.
My passion is sailing, I race sailboats from April through November. I love skiing and was an avid runner.I
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Recent Activity
Recently:
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12 journal comments, 6 hugs received, 5 hugs given, 1 photo comment
Yesterday
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Lindaheff gave IUPUI a hug 9:07am
Dear Janet Thanks of thinking of me before my Monday trek to MSKCC. My oncologist considers my CA levels…
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Lindaheff commented on JulierRae’s journal entry TGIF!! Blood Test and Parent/Teacher Conf 9:01am
Dear Julie I`m sure Nick will make honor roll next times, social studies is difficult because you have…
Thursday
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Lindaheff commented on JulierRae’s journal entry Happy Thursday!! Cleaning Kitchen 12:39pm
Dear Julie It sounds like Nick is finally feeling better and that you are back to cooking many yummy…
Wednesday
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Lindaheff commented on tinynae’s journal entry Set Back 5:28pm
Dear Renee I`m so sorry to hear about your bloodcounts, however most of the ladies of this DS site have…
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Lindaheff gave tinynae a ray of sunshine 5:21pm
Dear Renee I figured you have a lot of responsibility in your job, you certainly are a "Lady of…
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Journal
This entry is private
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Hugbook
Hug
Hi Linda! Sending you a hug. I've been ill and contagious, but I'm back! I have missed all of you? How is your daughter? Is it safe to send the book to you?
Mother started her new chemo. The oncologist told her it is the strongest dosage yet. She's had one treatment and her ankles are swelling, but she sees the doctor on Wednesday. She also got to go home on her off week. My brother came to pick her up and she was absolutely giddy. She loved seeing her sisters and several of her friends gave her a tea party! She has to return to Atlanta tomorrow but we're hoping that she will be able to come home in a few weeks for good and get her chemo at my brother's hospital. He's made all the arrangements for Mother to do so. Just waiting for her oncologist's permission. She will still see him once a month, but will have chemo every other week near her home.
I hope your treatments are going well. Have your numbers dropped again? Let me know how you are!
Love and Hugs!
XOX
Susan Wales
Love and Hugs!
XOX
Susan Wales-
Hug
Thanks for the comment on my journal. I hope you are well. Did a lot of sleeping lately. I don't know what is making me so tired. I don't think the low dose Cytoxzn is suppose to make you fatigued like this, so maybe it is the tail end of my cold. Finally feeling pretty good now, it time for 7 pm Family night. I hope you enjoy the rest of your weekend. Love and Hugs and Prayers that you continue to do so well with the treatment. - Julie
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Little Love
Hi Linda, I have been falling asleep early most of this past week. Our internet has also been cutting out at home so between both of these things I haven't gotten back to you. We are continuing to have glorious weather these days. My husband and two of my sons are going to the Notre Dame football game tomorrow. They should have a great day. I know you have chemo on Monday and I hope the day goes well. My next round is next Friday. I am feeling pretty well during the day but in the evenings I am just so tired. I am very glad to have the weekend off. Here's a little love to get you through Monday. Has your CA 125 leveled off for now? I truly hope so. Love and prayers, Janet
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Hug
Hi Linda,
Thank you, I think Miles is wonderful but I am bias! I work for a very large Grocery chain. I am a Deli manager, I also over see a seafood department and a Kitchens department. Coming the New Year I will also be taking up the job of being a Humman Resource manager. They are getting rid of 80% of their HR's and well the main managers will be required to do their job. Not exactly what we want at all!! We already have plenty to do. But I am very glad I didn't take the Humman Resource job like I was going to about a year ago, so I should just be thankful I still have my job! Anyways I hope your doing well, and feeling well!!!!
~Renee 
Ray of Sunshine
Hi Linda,
Here's hoping that you are having a good day...week...and beyond. I am finally able to "talk" a bit more without biting the inside of my cheek! It was amazing, I was having so much trouble getting things across on the phone...and of course, people were saying, "can you please repeat that!" Reminded me how I never had noticed how often one bends over in a day until I threw out my lower back!
I do hope that your treatment isn't causing too much stress...is it getting cold there? We have the last of some nice days....Mac is golfing. From today on we are supposed to have many gray and rainy days. Guess it's a good time to move to Florida. Do you think that you will have the chance to visit
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Photos
Lindaheff hasn’t uploaded any photos yet
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Support Groups
Close Ovarian Cancer
I was diagnosed with 3c epithelial ovarian cancer with a CA125 of 7500. I had 18 rounds of carboplatin/taxol until I became resistant. Then Doxil and presently Avastin/Gemzar
Treatments
- Avastin Working / Worked
- decreased CA 125 to 24 (normal range) Stuffy nose
- Carboplatin Not Working
- major hair loss, hearing and sight losses. Platinum resistant
- Chemotherapy Working / Worked
- Initially disappointed but finally have a drug that seems to work
- Gemcitabine Working / Worked
- working with mild nausea
- Taxol Not Working
- CA125 numbers started rising Neuropathy
