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It's been a while... Mood
Monday, October 5, 2009 | A General Update story
Gee I didn't realize it had been so long since I'd written. I had another relapse that started on the way home from our California vacation. Made me so sad. I really tried to take it easy, but the fatique hit on the drive home I slept for 24 hours. By the next day I had tremors, vertigo, and a weird burning icy feeling that kept coming and going in my right leg. Then by the next weekend I was dragging my left leg. I'd never really had problems with walking like that before. I just had steroids in June and didn't want them again so soon so put off calling my neuro. I thought maybe if I just rested a lot it would all go away. What a nightmare. Well, after a month everyone at work and home was, of course, noticing the extreme fatigue and the fact that my leg was not exactly functional most days. I was just getting worse by the day. So I called my neuro who took one look at me and said that I needed steroids and that Rebif was not working for me. So now I am on Copaxone which I started on 9/17. My doctor had me stay on Rebif right up until the Copaxone arrived in the mail and then just switch from one to the other. I don't think my body was too happy with that. The Copaxone injections have been much more painful than the Rebif ever was. After first I didn't get red spots and itching from them, but last week that started too. I also get nausea during the night from Copaxone. I spoke with Shared Solutions and they said that nausea is a side effect. My neuro actually wants me on Tysabri since my MS has been very active during the past few years and my neuropsych eval was not good. She feels that Tysabri may help prevent disability and may help with some of the cognitive stuff that's going on. I just hope I'm not going there too soon. Seems like kind of a big gun for MS and this all seems to be happening so fast in a way yet in a way not since diagnosis for me was a very long road. 
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