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Neener 
Forgot to mention my latest weird symptom. My right foot has a mind of it's own. At first I thought it was just some kind of spasm, but I'm starting to think my dystonia has spread to my right foot. About 3 months ago I got in my car to drive to work and my right foot turned completely sideways in my clog and I couldn't straighten it so that I could drive. I kept trying to put it back in my shoe flat so I could drive but it wouldn't stay. Finally, after about 5 minutes it relaxed and I was able get it in my shoe and drive. Then it happened a couple more times. Then this last week it happned twice the first time I was sitting in my recliner with my feet up and I watched as my right foot was pulled completely over toward my left leg. If I had gotten up to try and walk I would have had to walk on the outside edge of my right foot. When this happens there is no cramping, but there is a lot of pulling on the muscle on the outside of my calf. Very weird. This was on about Wednesday in the early evening and then on Friday night I woke and got up to go to the bathroom and then got back into bed and was still awake when it happened again. Very bizzare. I have dystonia in my right hand and have had it there for about 12 years and I also have cervical dystonia in my neck and shoulder muscles. My neurologist says that it is caused by demylination of the basal ganglia section of the brain. Very bizzare.
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Gee I didn't realize it had been so long since I'd written. I had another relapse that started on the way home from our California vacation. Made me so sad. I really tried to take it easy, but the fatique hit on the drive home I slept for 24 hours. By the next day I had tremors, vertigo, and a weird burning icy feeling that kept coming and going in my right leg. Then by the next weekend I was dragging my left leg. I'd never really had problems with walking like that before. I just had steroids in June and didn't want them again so soon so put off calling my neuro. I thought maybe if I just rested a lot it would all go away. What a nightmare. Well, after a month everyone at work and home was, of course, noticing the extreme fatigue and the fact that my leg was not exactly functional most days. I was just getting worse by the day. So I called my neuro who took one look at me and said that I needed steroids and that Rebif was not working for me. So now I am on Copaxone which I started on 9/17. My doctor had me stay on Rebif right up until the Copaxone arrived in the mail and then just switch from one to the other. I don't think my body was too happy with that. The Copaxone injections have been much more painful than the Rebif ever was. After first I didn't get red spots and itching from them, but last week that started too. I also get nausea during the night from Copaxone. I spoke with Shared Solutions and they said that nausea is a side effect. My neuro actually wants me on Tysabri since my MS has been very active during the past few years and my neuropsych eval was not good. She feels that Tysabri may help prevent disability and may help with some of the cognitive stuff that's going on. I just hope I'm not going there too soon. Seems like kind of a big gun for MS and this all seems to be happening so fast in a way yet in a way not since diagnosis for me was a very long road.
Talk about an anxiety attack. Monday I thought I was starting to have another relapse. I still may be, I'm holding my breath. I'm starting to get dizzy again and my tongue is numb and I'm having some trouble swallowing. Monday I was also having tremors and I was having weakness in my legs. I can't go through this again so soon. No! No! No! I went to bed early in hopes that I could just sleep it off. Please no. Maybe it's just the heat. Doesn't seem quite as bad today.
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| June 2009 |
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May 2009 |
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Friday, 5/22
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April 2009 |
Friday, 4/17
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Monday, 4/13
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Thursday, 4/02
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March 2009 |
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Tuesday, 3/31
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February 2009 |
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Thursday, 2/26
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This same thing is what happens to me when I have a flare up. I get this sort of thing over my whole body when it gets bad. Sometimes it lasts for a few minutes and sometimes it can go on for days. Hope yours doesn't last long.
scotti