Journal Entry for October 31, 2009
October 31, 2009 1:26am
It has been several months since I have written on this site, and this is because I am now 'Living with Myeloma' rather than facing …
Progress
95 %
Poppycath
10:26am, August 6, 2009
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About Me
Poppycath
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About Me
Born in the USA but have lived for the past 40 years Australia. Diagnosed with myeloma in 2003 - nearly died three times, but still going strong. Set up a local cancer support group in my home town 6 years ago, now it has over 100 members! Am now 'living with cancer' and no longer facing each day thinking it might be my last!!
Born in the USA but have lived for the past 40 years Australia. Diagnosed with myeloma in 2003 - nearly died three times, but still going strong. Set up a local cancer support group in my home town 6 years ago, now it has over 100 members! Am now 'living with cancer' and no longer facing each day thinking it might be my last!!
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Recent Activity
Recently:
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3 journal comments, 1 hug given
Thursday
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Poppycath commented on SarahStarfish’s journal entry Why is it NOW that time slows down? 11:30pm
I have heard these sentiments expressed by many carers Sarah, both men and women, and there is no easy…
Wednesday
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Poppycath commented on SarahStarfish’s journal entry Still holding my breath...turning blue 1:12am
Oh Sarah, I do so feel for you! Having had PN for overf 5 years now I have taken a variiety of medications…
Tuesday
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Poppycath commented on foziebear’s journal entry more saddnes 5:59pm
Hello Foz -- in reading through several of our messages over the past year I feel that you are still…
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Poppycath gave foziebear flowers 5:53pm
So sorry to hear of yet another loss -- animals can leave a great gap in our lives when they go as they…
October 31
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Poppycath wrote a discussion post in the Multiple Myeloma support group: REVLIMID in Australia 12:53am
Just to let you all know that Revlimid has now been put on the PBS in Australia making it 'affordable'…
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Journal
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Journal Entry for January 29, 2009
January 29, 2009 4:03am
Having this reminder insures that I am making sure that I achieve this goal everyday.
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This GOAL is ongoing -- its more of a daily goal!!
December 17, 2008 1:48am
My goal is not one to assess on a monthly or weekly basis, for it is a daily life goal. Therefore 'progress' can not be rated except on a …
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Tears from others
December 4, 2008 11:57pm
I attended a morning thank you tea today and gave a small speech about the joy the work that these people were doing was bringing to the reciprents …
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Journal Entry for November 29, 2008
November 29, 2008 11:55pm
Since I posted my goal I have been able to provide assistance to at least four others. This is not a one way street, for I get as good as I …
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Hugbook
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I’m With You
Oh, the strength you show... it gives us all so much hope! I'm soooo with you.
Hug
Hi Sweetie, Hope you're doing OK
Celebration
It started raining,it's time to head south for the winter!
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Thanks
Yeah, this hasn't been easy and easy journey. It seems it's going to get more difficult as Tom read about autologus stem cell transplant and now things have been kicked up a notch. His doc put him on antidepressants and gave him some antianxiety meds. He's going to truly need it. On second thought, so will I....
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Well Done
I am so happy for you fewer lesions is great whatever your doing keep going with it.
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Photos
Poppycath hasn’t uploaded any photos yet
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Support Groups
Close Multiple Myeloma
Stage: IIIDiagnosed in 2003, I have had Myeloma for six years but thanks to all of the new treatments and drugs I am still going strong!! A big thank you to all of the research scientists and people who have been prepared to do Clinical Trials to test these things for I have truly benefited!!
Treatments
- Aredia Working / Worked
- Worked, but stopped because of fear of osteonecrosis. Have now resumed due to bone crumbling, but only once every three months,
- Chemotherapy Somewhat Helpful
- Side effects nearly killed me.
- Dexamethasone Not Working
- Dexamethasone is a real NO NO for anyone who has previously had diverticulitis!! Because of my weakened bowel, I ended up with two episodes (operations) for perforated bowel!! Be very careful if you are EVER prescribed dexamethasone!!
- Morphine Working / Worked
- Patches have been the only way of getting pain relief!
- Revlimid Working / Worked
- Fantastic drug - have been on it for 2 1/2 yrs.!
- Thalidomide Working / Worked
- Gave me neuropathy
- VAD Somewhat Helpful
- The Dex caused two bowel perforations requiring two surgeries!
- Velcade Somewhat Helpful
- Worked for 4 rounds then nearly killed me.
- Revlimid Working / Worked
- I have been on 10mg of Revlimid for just over three years with fantastic results!! No dex just a bit of aspirin to prevent clotting. I am blessed!
- Fentanyl Working / Worked
- Started this a few months ago as a break through and it has proven to be extremely successful. Various strengths so you need to work out what is best for you. Instant response because it is absorbed through the lining of the cheek.
Close MRSA
After suffering two perforated bowel episodes from a reaction to dexamethasone, I ended up with MRSA for three years.
Treatments
- Bactrim DS Working / Worked
- long term but eventually worked
- Biaxin Working / Worked
- this caused nausea and had to be stopped
- Vancomycin Working / Worked
- this was tried with limited success
Open Carpal Tunnel Syndrome
I had CTS 36 years ago and had both hands operated on within two weeks of each other!
Treatments
- Carpal Tunnel Release Surgery Working / Worked
- Cured the hands, but not individual fingers. These had to be operated on later.
- Wrist Splint Working / Worked
- have perm. ones to use when necessary. Also one made of lambs wool which is really good because it keeps it warm!
Open Diverticulitis
Had diverticulitis many years ago and have a real cure that works for me!
Treatments
- High Fiber Diet Working / Worked
- Didn't work well, still had problems.
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Groups
