Journal Entry for June 23, 2007
June 23, 2007 4:13pm
Well I'm a member of a Myositis support group, ONA group on this site & also maintain a DM(Dermatomyositis) blog on blogspot. I'd …
immortel22 
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About Me
immortel22
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About Me
I am 25 years old. I was diagnosed with Dermatomyositis in 1997 & Optic nerve atrophy in 2005.
I am 25 years old. I was diagnosed with Dermatomyositis in 1997 & Optic nerve atrophy in 2005.
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Interests
Listening to music, watching movies , long drives , watching football, traveling , chilling out with friends & sometimes reading books. Also have a habit of writing down stuff on my blog at blogspot : www.memyselfndm.blogspot.com
Listening to music, watching movies , long drives , watching football, traveling , chilling out with
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Recent Activity
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Journal
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Journal Entry for April 22, 2007
April 22, 2007 2:18pm
ZZZZZZZZzzzzzzzzz I am feeling sleepy most of the time. Wonder whats happening. Also feeling tired ,fatigue on some days. Some days I am all …
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Journal Entry for April 19, 2007
April 19, 2007 8:31am
I already have a blog on blogspot. But I am a real bad writer n dont find much time to write such stuff !! But just thought of maintaining this small …
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Hugbook
Hug
Hi, thanks for your message. Glad to hear your health is quite good now. I read your blogs, it sounds like the homeopathy is really helping. I hope it continues to do so. I hope you had a good weekend. Have a good week.
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Hug
Hi, thankyou for the hug and friendship. I am doing ok at the moment, although i have had some new health issues to deal with recently. Just being grateful for the good days right now. How are things going with you? Sorry to hear you were so young when you got ill it must be pretty hard for you. How are you feeling at the moment? Take care. Hope to hear from you soon.
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Hug
Hi, i came across your profile and wanted to give you a hug. I have auto immune disease (mctd) and my mother has the same immune disorder as you. I notice you live in India, i have been to chennai a few times, and around conoor, ooty etc. I hope things are going well for you. Sending you a hug from England.
Hug
hello welcome to the y neuropath group hope it helps you as much as it does me have great day
Hug
Hope something great happenes to you today!
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Photos
immortel22 hasn’t uploaded any photos yet
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Support Groups
Close Optic Atrophy
I was diagnosed with optic nerve atrophy in Jan 2005. However my eyesight has been constant for the past 10 years. I cannot see with my right eye,can just about count fingers at a distance of 1 meter.However I make up with my left eye which is normal. I have a past history of Dermatomyositis,an autoimmune disorder diagnosed in 1997. I was also in a coma for few days in March 1997, which is suspected to be the cause of my optic nerve atrophy.
Treatments
- Prednisone Working / Worked
- Treatment i had undergone for Dermatomyositis. It has got a large number of side effects.
Close Fitness Goals
Type: Improve overall fitnessI was diagnosed with Dermatomyositis,an autoimmune disease in 1997. Since then have been working out regularly. Workout atleast 5 times a week when I'm not too busy.
Open Coma
In March 1997 , I slipped into a coma for about 10 days. Later I was still in a semiconscious state for few days. After recovering from the coma, I went downhill again n 3 months later was diagnosed with an autoimmune disease 'Dermatomyositis'. Over the years , I was also diagnosed with optic nerve atrohpy which was caused by the coma/convulsions that happened in 97.
Open Career Changes
I had a wonderful job where I was working as an intern last year. My project manager was very happy with my performance & asked me to join the organization 2 months before the actual joining date. Everything looked good , but then had a medical before joining for company insurance. I'm under treatment for dermatomyositis & optic nerve atrophy & as a result couldn't clear the medical. Now I have found another job. Not a similar kind of profile. It is quite hectic, but I am happy here.
Treatments
- Patience Considering
- I guess have to be patient panicking now just wont work.
Open Polymyositis & Dermatomyositis
I was diagnosed with Dermatomyositis in 1997 at the age of 14. I was bed ridden for couple of months. Couldn't even lift my neck in bed & was fed through a gastro tube. However after being wheel chair bound for about an year my condition improved. I completed my studies & am leading a very normal life now. Today I am able to work for 9+ hours without a problem & even play an occasional sport :)
Treatments
- Prednisone Working / Worked
- Leaving all of its side effects aside it was a life saver and helped in getting the disease under control.
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Groups
