Spencie23
November 19, 2008 1:07pm
When the nf1 was first explained to me i have to admit my first reaction was to run away, really fast and as far as what was humanly …
Spencie23
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Spencie23
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OOO boy can I relate...I have the same issues ...The only diff is my son is 7 and he had his tumor removed completlely and now has steel plates and screws but the same change in behavior.. Outburst, real sensitive at times cries alot.. He never was like this ...He is my only child ....I know for sure it was the alteration of the brain during surgery that had to cause and bring on this change. THey the child Pschycologist has gave my son some mild medication call Focalyn 10 mmg and it is helping..I give it to him before school and he is straight honor roll now..It wares of by 4 pm everyday..And I dont give it to him over the weekends..Maybe you can check into it..They also told me that age may be a factor but i dont buy that..I know my child well enough..Just hang in there it will get better I promise.We as mothers endure just as much pain if not more than the children..Just remember take care of youre self so you will be around to take care of youre little one..I have just started doing little spec things for myself ..I wish you luch ...Sincerely youre friend Denise
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Superhero Status
I AM FINISHING UP CHRISTMAS DECORATIONS. REMEMBER THOSE PAPER CHAINS? WE ARE MAKING THEM OUT OF PIPE CLEANERS. WORKING OUT GREAT. HOW ARE YOU? I AM OKAY. WE ARE LUCKY IN INE REGARD OUR FAT CAT CALLIE IS JUST TO LAZY TO BOTHER OUR LITTLE TREE. BESIDES I PUT DOWN A NEW RUG FOR HER TO LAY ON SO THAT IS KEEPING HER OCCUPIED. LOL
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Support Groups
Close Neurofibromatosis
my 2 year old daughter has nf 1 and is having chemo for 2 optic gliomas
Close Chemotherapy
my 2 year old is having chemo for 2 benign brain tumours
Treatments
- Chemotherapy Working / Worked
Open Brain / CNS Tumors
Type: Othermy 2 yr old has a vasco port
Treatments
- Chemotherapy Working / Worked
- she has in operable benign brain tumours that could potentionally blind her
Open Depression
i have clinical depression
Treatments
- Lexapro Somewhat Helpful
- it makes me numb to my emotions im unable to cry i lose my apetite and wake up really early in the morning
