dragonfly22

Close Ehlers-Danlos Syndrome

I was diagnosed in 2007 with EDS, although have had symptoms since childhood. Most troublesome are, chronic pain, fatigue, and heart palpitations. I've done a lot of research on line, but have had difficulty finding a Dr. who knows much about EDS, let alone who is willing to treat it.

Close Chronic Pain

I was diagnosed with fibromyalgia in 2005, Ehlers-Danlos syndrome in 2007 and have multiple heart conditions. I have been in chronic pain since childhood, but manage to keep working somehow.

Treatments

Chiropractic Adjustment Considering

Somewhat helpful in the past. Might try it again.

Cymbalta Not Working

Couldn't stand the side effects of waking up in a cold sweat numerous times each night.

Flexeril Working / Worked

Has worked somewhat, but makes me too tired.

Hydrocodone Working / Worked

Norco has worked the best so far.

Meditation Working / Worked

Helps for the short term...doesn't seem to last too long.

Morphine Somewhat Helpful

Can't remember why I stopped- only took it for a short while.

Neurontin Not Working

Side effects too much! Felt like my head was on a toothpick.

Physical Therapy Somewhat Helpful

Only helped when I was doing it. Somedays it caused more pain than it helped, though.

Topamax Working / Worked

Seems to have cut down the number of migraines drastically.