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mindlesley
Female, 61, sydney, AUS
"Very rainy here. Feeling very tired but otherwise very happy that my IFN genes appear to be sensitive to Pegasys - undie at 12 weeks."
10:37pm, May 30, 2009
IFN I DID IT AGAIN Mood
Tuesday, March 3, 2009

I added a new drug to my regimen, Cinacalcet or Sensipar, a calcimimetic that fools my parathryroid glands into thinking my calcium is too high, and thus the activity of the gland drops back, hopefully to where it should be. This is a common side effect of having no kidneys to speak of. Most people don't realise the complexity of kidney function. They are not there just to make pee. They secrete hormones that stimulate bone marrow to produce red cells; preserve body protein stores - by stopping it leaving your body via the urine; and control the levels of calcium, phosphate and other ions (minerals); They change Vitamin D into the active form used by the body. The only problems with this drug is that it causes nausea which isn't that good added to the IFN's side servings. I seem to be gradually getting used to this unless my Dr. increases the dose. Had my bloods done for 4 weeks, not viral PCR just virus neg or Pos. The big test will be the 12 week one. Haven't got the results yet. I'm not optimistic about clearing it early as I've had it residing in my cells for a bloody long time.

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Comments

  1. KneeDeep

    I had no realization that the kidneys did all that.
    I knew they were important.
    So sending you good vibrations for this new drug to do its job and not make your nauseaous.


    KneeDeep

  2. slkmom

    wow our body's are wonderful things. hope the new meds does its thing


    slkmom

  3. Mckenzie

    You know what you could take for the nausea, Gravol, they are sold by 100 pink little pills, about 5$, not expensive at all, well in canada anyways.
    They give this to kids when they are going for a long car ride, so they won't get nausea, or sick in the car.
    They do make you sleepy though.
    So how are you feeling tonight.
    You must be in bed now, here Eastern Time, Canadian it's 11:04pm.
    Did mostly paperwork today, damn budget never enough money, lol.
    I got myself a nice cell, when the invasion occured mine was robbed so, I got one free with a 3 year contract.
    Camera, internet, the works. I should receive it, in a couple of days.

    So you got your lab work done, let me know how your enzymes are, ALTs & ASTs.
    So your PCR won't be until week 12, funny they should have tested you at week 4 anyways.
    Just to see how much lower your viral load would have been after 4 weeks of interferon.
    I would have loved to see that.
    It would give you a better idea on how respondent you are, a quick or slow, ect...
    Your not curious, I would have asked, since you are entitled since you are type 4 you mentionned?
    Did you swim today? I wish I had a pool, my hubby spends so much money on all kinds of toy toy for himself, but when it comes to me, nope or he'l buy me a snowmobile, this year I didn't even do any.
    I just might sell my machine, and get a pool installed, you have just gave me a terrific idea. lol
    Yessss.
    I'll talk with you later my love, keep on keepin on.
    Love Mackenzie xoxo


    MckenzieCommunity Leader

  4. mindlesley

    Found that I stopped the nausea by taking the drug at night rather than daytime. Mindy xxx


    mindlesley

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