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MsCowgirl
Female, 50, Greenough West Australia, AUS
"How lucky are we all!"
1:31pm, October 25, 2009
I will write soon....... Mood
Monday, April 27, 2009 | A General Update story

     I need to respond to quite a few hugs and messages, so I have to apologise if someone hasn't heard back from me just yet. I will catch up soon, hopefully. I'm smack-bang in the middle of a big flare, my whole body hurts and I'm finding myself trying to push to the back of my mind those thoughts of disability, immobility, fragility and spasticity. I'm walking like a robot, stiff from the head down - just call me "Metal-Mickey", and my neck/upper back is really giving me grief. The spasm was so severe last night it felt like I was pinned under a vehicle, with a huge pressure bearing down on the nape of my neck. Man, I try and ignore a certain level of pain but this one really grabs my attention! 

 

It's been a week now, I think I need to call my rheumy tomorrow and eek, maybe have to go back on Prednisolone. I went to the Dawn Service and even though it was only a few hours of time, I could hardly keep myself standing by the time I got home; and I'm sooooooooo tired. I need my Humira to turn up, only 2 days to go now before it arrives. My hip and my foot want to give out too, a bit like Liquid Steel trying to set inside your body. And to think, here we are today worrying about the world-wide spread of Swine Flu - when this flare was triggered by having a Flu Vaccine that does not include that particular strain anyway.

 

But all is OK, Lilly my young cat, who is fluffing up now winter is approaching, has just snuggled up on her cusihon right by me and is settling in for the night. I'll call it quits too, this update has already taken me an hour to write, sooooooooo tired. Take care everyone. 

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Comments

  1. Tessie2

    Awww hun. Take care of YOU. We'll still be here for you, even if you are (strangely) quiet :)
    ((hugs))
    tess


    Tessie2

  2. rattles

    Lily sounds like great company, I want a kitty!


    rattles

  3. vchen

    Keeping you in my prayers.


    vchen

  4. Bistro

    I just don't know how you stay so positive and funny. Your descriptions are so good, "Liquid Steel trying to set inside your body"! Why don't they stop spending so much money and energy on war, and redirect it to curing RA???

    Do take good care of yourself. I hope you get the predinisone and it kicks in fast to melt that liquid metal.


    Bistro

  5. JillyT

    I am sorry you have been feeling so ill honey. My doctors use prednisone for bad flares - if I were in your shoes my dr would put me right back on it until it got under control and then take me off it - it works so well, sigh. So gosh, I hope you are better...missing you jilly


    JillyT

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