oldladybee 
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About Me
oldladybee
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About Me
retired teacher; sister of myasthenia gravis patient
retired teacher; sister of myasthenia gravis patient
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WEll I am 46 and going thru it all now, everything your sister is going thru is exactly where I am now. They say this dsease is rare? I think not, it is rude, at times unforgiving, and demeaning... I want to be able to hold my grandbaby when its born without worry of dropping I have till May to get better! I too am out on STD from my employer. THanks for your support and encouraging words, hug your sister!
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Close Myasthenia Gravis
My sister has severe MG. She has weathered three crises.
Treatments
- IVIG Somewhat Helpful
- Onset of MG in Feb 08. Severe breathing problems, swallowing impossible. IVIG has minimized muscle loss for eyes, vocal cords, but only temporarily
- Mestinon Somewhat Helpful
- Mestinon and prednisone have begun to kick in a bit. Had pacemaker put in for heart; feeding tube for nourishment/meds.
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