dihenry's Journal

the other day I wrote a partial journal entry before the nurse came into the lounge to wisk me away to get my pressure checked....

I am progressively getting stronger in the legs and the dizzy spells are lessening...  The thing that sucks right now is that my insurance company has only given me clearance to stay in the hospital until Monday....  And they wont let me have my tysabri infusion until the day I leave the hospital still!

I am worried about what happens if I cannot get better by Monday.  Right now I respect Doc K's decision to keep me in rehab longer and am actually glad hes able to do it despite the fact that hospitals suck!  But more importantly my insurance sucks right now!

They are tentatively talking about letting me rehab in some skilled nursing facility...  I definitely dread that possibility.  I cannot see , my cat that way.  Also I would feel way awkward being around a bunch of old people with half their brains....

I am using the hospital's computer right now and they have blocked half of DS's capabilities...  My computer at home crashed like a week before the flare up so thats the reason why I haven't really been on.

So I dont know what my future holds...  Its very scary!  All of my family lives out of town.  My family is a royal pain in the ass anyways.  My mom doesn't always realize the severity of the symptoms of the flareups.  Basically she won't drive to Ames unless I am having open heart surgery!  She swoops in and "saves the day" when she thinks its appropriate with random gifts so that she doesnt look like a complete bitch to the rest of the family....  Did I mention my family is messed up!

Either way I cannot give up!  I want to live the life of a normal 26 year old the best that I can!  I need to get home to !  She is lonely!  I love my cat!  I need to get back to school!

Did you know i am probably the youngest person in my unit by approximately 40 years!  Most of the other patients I have seen in my unit are my grandmas age!

So anyways keep me in your thoughts and prayers...  I have to get better...  theres no other option!  Lets just hope it happens by Monday!