So I am using the computer in the hospital's lounge.....
I have been in the hospital for about 11 days now and probably will be in the hospital another 4 or 5 days. I guess I had "the big flare" and everything has gone wrong since I got here.....
So first off my insurance is stupid...
They did not give authorization for the acute rehab program that my neuro originally wanted for me until I was in for about 5 days. Now they are saying that I cannot get my first infusion of Tysabri until the last day that I am in the hospital... It makes no sense! something about having the infusion as an outpatient versus inpatient... Stupid!
Secondly I know my neuro wants me to lose weight.... I am cool with that but....
The freaking dieticians are treating me like I am a freaking moron! I dont know who ordered what but I know what a serving size is. What I need help with is substituting foods so that I can feel full and not have dizzy spells as bad! I also need help with finding healthy foods that are more in my budget that dont repulse me! I do eat fruits and as many vegetables as I can. I am picky about my veggies though... The hospital veggies taste way overboiled to the point where only the broccoli is tolerable. They do have a spinach salad that is pretty good. The dieticians are criticizing my choice of a fresh fruit plate!! s!
The other thing that es me off is that sense my neuro said that I should lose weight and talk to the dieticians they keep on changing things on me without even telling me what the hell is going on! There is a menu dealy.. but still.. nurse in room gotta go!






so sorry you are experiencing all of this. but in the end, the doctors will get you back in shape. know that people care about you.
twinks
twinklee1