Gathering is done till next year.
August 31, 2009 9:06am
Well Folks the Gathering is over. I met a few new people and made some new friends. Some people dropped out and there were others that …
Progress
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Taqueme
11:36pm, August 31, 2009
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About Me
Taqueme
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About Me
I work in community inclusion and recreation for people with developmental disabilities. I am married and I have lovely wife and two beautiful daughters. I also have Neurofibromatosis. Don't feel sorry though. I don't.
I work in community inclusion and recreation for people with developmental disabilities. I am married and I have lovely wife and two beautiful daughters. I also have Neurofibromatosis. Don't feel sorry though. I don't.
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Journal
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This is it.
August 25, 2009 10:52pm
This is it folks. The NF Gathering is this weekend. Come one come all. You can come for the day or stay the whole weekend. There are dozens of …
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Its all down hill from here!
August 19, 2009 11:15pm
We are in the last week before the Gathering. There is still time if your are going to go. You can just show up for one day if you like. It is …
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The Gathering continues forward!!
August 4, 2009 11:38pm
The NF Gathering continues to move forward. The news of the gathering has been posted on the midwest NF, Indiana, Illinois, and …
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Moving Forward
July 19, 2009 3:13pm
Things are moving along quite smoothly. An email blast with a link to my Gathering website was sent out to people on the midwest NF mailing …
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Hugbook
Hug
Thank you so very much. My husband and i are also suffering deeply in financial problems. We are looking for work but there is nothing out there. our income is deeply critical. We are living on $680 a month. his part time job is cutting hours starting monday to 21 hours a week. i do not understand why the president does not do somthing for our country. We need it desperately. i am so so sorry i have not been on my illness is taking a big number on me. i am waiting to see from my meeting i had with heritage health services if they will get me on social security, because social security did not believe all my doctors medical reports. I hope everything is well with you. I am so sorry to give you bad news about me it is even worse, i need tro write it all out in my journal so everyone can read it. Please take care and stay in contact with me. Thanks again for the prayers. HUGGLES Kyndra
High Five
I am getting excited about the NF gathering. I am looking forward to meeting you and your family.
Thumbs Up
Read your response to the bumps post. What a story you have and what a great attitude to take!
High Five
i completly agree with you. ppl with nf shouldnt feel bad when they go out in public. we get alot of stares bc my baby has it and you can tell hes a little different bc hes trached and his tumors disfigure his face and i cant stand it when ppl stare at him but ive learned how to handle it,it doesnt bother me as much as it use too. i had a lady follow us around in walmart one time staring at will and i finally turned around and asked her if i could help her with something
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Shout Out
i think that is great.
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Goals
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Support Groups
Close Neurofibromatosis
I have Nf and two daughters age 2 and 4 who also have nf1. Want to know more? You'll have to ask.
Close Sleep Apnea
I have sleep apnea
Treatments
- CPAP Working / Worked
- Still feel tired.
- Lose Weight Working / Worked
- Still tired
Open Foster Care
I'm a new foster parent in Toledo, OH. I have not had my first placement yet. I just finished jumping through all the hoops.
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