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con24 
8:02am, June 28, 2009
aw man, i have a red blood cell count of 6.6 and everyone i share this with tell me, i really should be given injection or infusion to boost it and then take tablets. i am on 3045mg once a day... after a week and a bit i feel worse.. and last night was just horrible!!! had to take an anti inflammatory for my joints (which i never take for obvious reasons).... i caved and gave in to the blasted tablet... so i have had D all day and it has just completely made my fatigue worse.. as if i thought t could any worse... phoning doctor tomorrow i am just so fed up being fobbed off with medication and fingers crossed.... there is so stern decisions being made about my quality of life being eh nil!!!! i am 25 should be able to enjoy my life and i am currently in bed all day, need mum to feed and wash me.. i feel like a baby and it just is awful... if i think an injection may boost i will be doing my hardest tomorrow to put my mind across and say what i think ...... and wait for a positive movement to help me feel they are doing something productive for my life!!!!
Pray for a good sleep...... i havent been able to sleep at all
Comments
If your red count is that low, you REALLY need a transfusion (infusion) -- getting an iron injection isn't enough. Oh, I know how you feel with the iron tabs; I'm supposed to take them all the time, and I just can't, unless I want to live in the bathroom! I wish you didn't need them -- but you do until your iron levels come up a little. Spread out the dose, take it with food and vitamin C, and see if you can't manage it a little better. And you're right -- you SHOULD be able to enjoy your life at 25. Crohn's and UC don't care about how old you are, unfortunately. Let yourself be a baby if you need to. Think about how you'd treat your very best friend in the world -- then be that kind to yourself. It's hard to stand up to docs when you feel so low, I know, I've been there too -- but you really must right now. Most doctors truly do want to help; they just tend to be overworked, and outnumbered by patients! I hope you're better very very soon. Take care of yourself and give yourself permission to rest in bed because you need to. Tomorrow will come, and God willing, it will be better. You're in my prayers, my little blessing!
Lee
LeeS58