SleepyOne 
10:35am, September 18, 2009
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SleepyOne
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High Five
thnxx for the msg! made me laugh for once today. hope ya had a good day.
I’m With You
HI! read your posts and checked out your profile. You'll be fine, just keep plugging away, and learn to "swim with the tide" as we say back home. Learn how to work it.
BTW, Xyrem changed me too. Wound up hating it. I take a 1/2 Provigil with Adderall. Right now it seems to be the best cocktail during the day.
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Close Narcolepsy
I'm Narcoleptic, EDS started when I was around 18.. didn't think much of it. At 22 cataplexy kicked in and I was dx a year later.
Treatments
- Dexedrine Not Working
- I didn't feel anything when I took the amount prescribed.
- Provigil Working / Worked
- It keeps me awake, but i'm unable to focus on one thing. My mind jumps all over the place. But still, I like it.
- Xyrem Working / Worked
- Positives: 1)Knocked me out at night when ususally I would be awake. 2)Cataplexy slowed. 3)Kept me awake during the day w/o other drugs. Negatives: 1)KNOCKED ME OUT!, 2) Way too much salt, which effected my muscles during the night. I would wake up screaming some nights because of the pain. 3) My heart rate was up for the first few hours of the day.I was always anxious. 4) It changed me, I wasn't myself.
