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About Me
RTZJ9
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About Me
Born with Beta Thalassemia which until recently caused me little concern. Obese my entire life. Despite trying to forestall Diabetes, which runs in my family, I have been medicating it now for ten years. Recently diagnosed with Primary Sjogren's Syndrome and suffer daily from fatigue, pain, depression, oral and nasal ulcers, tongue pain, dry eye and mouth.
Born with Beta Thalassemia which until recently caused me little concern. Obese my entire life. Despite trying to forestall Diabetes, which runs in my family, I have been medicating it now for ten years. Recently diagnosed with Primary Sjogren's Syndrome and suffer daily from fatigue, pain, depression, oral and nasal ulcers, tongue pain, dry eye and mouth.
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Journal
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Hugbook
Present
Hello! I see you are near chicago! I am in Lake county, just wanted to stop by and say hello!
Ray of Sunshine
How are you doing, I haven't seen any of your posts in awhile. I've just kind of been reading the posts for helpful information. Hope all is well!! :)
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Rainbow
My name is Sharon. I am so looking forward to summer. Our winters are long and cold. I'm trying to send a Rainbow out to you, hope this works... :)
Flower
Just because
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Support Groups
Close Sjogren's Syndrome
Spent nearly a year visiting every kind of Dr. until finally someone had an answer. Taking meds for over a year and found really no improvement.
Treatments
- Restasis Too Soon to Tell
- Methotrexate Too Soon to Tell
- Folic Acid Too Soon to Tell
- Prescribed with MXT to improve oral ulcers
- Naproxen Somewhat Helpful
- Seems to help with the inflammation
Close Diabetes Type 2
Family history, obesity eventually won out - for most of my adult life I dieted and exercised and ate well and I may have forestalled it's appearance but now I am insulin resistant and require injections to control BS on a low carb diet
Treatments
- Actos Somewhat Helpful
- Dr. Changed up meds when A1c was high
- Byetta Working / Worked
- Taken it with oral meds as well as insulin - works - side effects suck but do improve with continued use
- Dietary Modification Somewhat Helpful
- Low carb diet and eating five times a day prevents really high highs and lows but a lot of work
- Humalog Working / Worked
- Injecting seemed like a big thing but once doing it got easy - brings me into control fast - low BS on occasion is unpleasant
- Insulin (Regular and NPH) Working / Worked
- Humulin N - BS under control with Humalog and Byetta
- Januvia Not Working
- Dr. changed up meds - did not see improvement with BS
- Lantus Somewhat Helpful
- Could not control BS for a full 24 hours with this medication
- Metformin Working / Worked
- Horrible intestinal problems, hair began falling out - worked for a while but eventually the high doses seemed not to be worth it
Open Anemia
Type: Thalessemia MinorBeta Thalassemia Minor - currently iron anemic requiring intravenous iron supplementation every six weeks
Treatments
- Iron Working / Worked
- Oral meds made me horribly sick current treatment is intravenous iron supplementation every 4 - 6 weeks
Open Depression
Type: Clinical (Major) DepressionDue to numerous chronic illnesses I also suffer from depression.
Treatments
Open GERD & Heartburn
Previous Ulcers and GERD diagnosis may be related to Sjogren's Syndrome
Treatments
Open Irritable Bowel Syndrome (IBS)
Treatments
Open Migraine Headaches
Treatments
- Aspirin Not Working
- never worked
- Imitrex Working / Worked
- Last line of meds works well if I catch headache early but once it has progressed it is less effective
- Naproxen Somewhat Helpful
- sometimes it helps if it is not too bad of a head ache seems to make the imitrex work a little bit better
- Tylenol Not Working
- never worked for a headache
- Zomig Working / Worked
- if I catch it right in the beginning this will work but does not seem effective if I have been suffering for a while
Open Obesity
Treatments
- Avoid Certain Foods / Chemicals Not Working
- Still Fat
- Jenny Craig Somewhat Helpful
- going there sucked/expensive/slow
- NutriSystem Somewhat Helpful
- lost 60 - got sick gained 75
- Physical Exercise Working / Worked
- only thing that really works but I am too lazy
- Slim-Fast Somewhat Helpful
- eat their meals to avoid overeating not realy for weight loss more a tool to maintain
- Weight Watchers Somewhat Helpful
- hard to be dedicated - very slow loss
