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  • About Me

    Image of SomethingBetter

    SomethingBetter

    Female, 103, Married
    USA
    Member since October 31, 2008

    • About Me

      The hope of something better keeps me going. I want to live the full life that other people live. But I've given up seeing my local doctors. Come to think of it - I give up.

      The hope of something better keeps me going. I want to live the full life that other people live. But I've given up seeing my local doctors. Come to think of it - I give up.

  • Journal

    • This entry is private

    • This entry is private

    • This entry is private

    • This entry is private

    • You might have CFS if...

      Mood February 2, 2009 11:58am

      (Some of these experiences are unigue to CFS, while others are experienced by many who have a chronic illness. Some are funny, others are not. …

    Read Journal

  • Hugbook

    Give SomethingBetter a hug



    • Flower

      From noreenb June 13

      thank you. what you said did help me to look at things with a different perspective.i am a mother,grandmother and do realize that i can only be a guide as my much younger loved ones try to navigate their way thru life.thank you so much for your help!

    • Hug

      From Ali5tair May 29

      The paper defining the empirical/Reeves definition can be read at: http://www.biomedcentral.com/1741-... should be read in conjunction withrnrnhttp://www.iacfsme.org/IssueswithCDCEmpiricalCaseDefinitionandPrev/tabid/105/Default.aspxrnrnandrnrnhttp://www.mecfswa.org.au/News_and_Media/News_Details/CDCs_Empirical_Definition_Further_Discredited/Default.aspxrnrnandrnrnhttp://me-cfs.se/dok/081205-cfs-no-longer-cfs.pdfrnrnThen you should gain the devistating impact this proposed empirical/Reeves definition 2005 will have on current CFS research if the CDC adopt Reeves.rnIt will put back research probably 10 years.rnI want to get better in my life time, not the next.rnCheersrnAl

    • Ray of Sunshine

      From LeeS58 May 26

      Thanks for the moment of sunshine your message brought!

    • Moment of Peace

      From Kazfar May 26

    • I’m With You

      From LeeS58 May 25

      Thank you!

    Read Hugbook

  • Goals

    Goal Completed on Dec 5, 08
    Goal Completed on Nov 23, 08
  • Support Groups

    • Close Chronic Fatigue Syndrome

      I have been dealing with CFS since '68/'69 when I got sick with possibly the Hong Kong flu. Back then CFS was just assumed to be mono. It "morphs" through the years. The first many years I suffered from low-grade fever, sore throat, swollen lymph nodes, unending flu, monthly respiratory infections, extreme fatigue, brain fog; but not so much connective tissue pain. Now, in my 50's, there is much more pain, even less stamina, chronic strep infection, still flu-like symptoms.

    • Close Meningitis

      I contracted a deathly flu back in the '60's in my early teens and with it, ended up with a bad bout of Meningitis. I never fully recovered from that flu and have been dealing with recurring episodes of Meningitis and CFS since then.

    • Open Lyme Disease

      About 2 yrs. ago I got a tick bite, with the "text book" bullseye rash on my arm. Trouble is, before the rash showed up, I was very sick with Meningitis, etc. So I was delayed in getting treatment.

    • Open ADHD / ADD

      My son has been diagnosed with ADD. My husband has been diagnosed with ADD. I think I might be a candidate, but I'm too afraid of a score of 3 out of 3.

    • Open Fibromyalgia

      Although I have been dealing with CFS for the past 40 years, Fibromyalgia has been an increasing problem for the past 20 years, making it harder to sleep or exercise.

  • Friends


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