another diagnosis...
January 15, 2009 12:05pm
fibromyalgia.... see it all go down right here: my blog: http://www.crazymiracle.com :)
keep holding on!
hb112204 
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About Me
hb112204
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About Me
21. Working on my nursing degree and hoping to get my masters and PhD. I've had chronic liver disease since age 5, and this messed up life is all I know. I've chosen to make the most of it though and let it teach me how beautiful and fragile life really is. So I take each day at a time. I struggle, I cry, yet I laugh and I love. Talk to me - I'd love to join you on your journey too. :) Oh, and I blog it all here: http://www.crazymiracle.com
21. Working on my nursing degree and hoping to get my masters and PhD. I've had chronic liver disease since age 5, and this messed up life is all I know. I've chosen to make the most of it though and let it teach me how beautiful and fragile life really is. So I take each day at a time. I struggle, I cry, yet I laugh and I love. Talk to me - I'd love to join you on your journey too. :) Oh, and I blog it all here: http://www.crazymiracle.com
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Interests
Loving. Living. My amazing fiance. My friends. My family. My 2 furbabies. Working on my nursing degree. Giving. Crafting. Snuggling. Scrapbooking. Sewing. Making things pretty. Writing. Sharing. Hoping.
Loving. Living. My amazing fiance. My friends. My family. My 2 furbabies. Working on my nursing degree.
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Recent Activity
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Journal
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It's all here...
October 29, 2008 1:25am
To my friends...
I wish I could journal here, but it's too hard because I also maintain my own blog. It's my *other* safe place …
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Hugbook
Little Love
NO I WISH I HAD A SCOTTISH FOLD OR A MAINE COON. I HAVE A RATHER LAGRE CALICO WITH MY DISPOSITION. old, stubborn and mean. lol.
Hug
Hi , just found this site. My daughter has psc. she was diagnosed when she was 17. She is now 27 and has cirrhosis. She will soon need a new liver. Or maybe just a piece of my old one ha ha. I am a LPN and work in a rehab center .I hope to meet more of the peaple out there that also have psc Chris
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hi-in regards to your post on my CP thread, the typical process in my state (obviously may vary from state-to-state) is that you go to the DMV and get a form that your doctor fills out and signs and you bring it back to the DMV and they assign you a plate or placard. also, in my personal experience only your doctor can determine if he feels you need a temporary or permanent placard. good luck! krissy
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hope it all works out for you
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Photos
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Support Groups
Close Infertility
Type: Hormonal DisordersBecause of a childhood chronic illness, there is only a small chance I'll be able to conceive my own child, and even at that, my doctors say it will kill me to carry it. My heart is in a million pieces.
Close Organ Transplants
Types: LiverPrimary sclerosing cholangitis since age 5. A transplant is our only true hope.
Open Hiatal Hernia
As a result of a childhood liver disease.
Open Narcolepsy
Since 5/2008 Living a nightmare...
Treatments
- Adderall Somewhat Helpful
- If it wasn't for the fact that it covered my entire body in hives...
- Dexedrine Working / Worked
- This is the cutest little clipboard I've ever seen! Fast shipping and so carefully packaged. Sweetest seller - definitely check out her shop! :)
- Provigil Not Working
- Didn't do a single thing for me.
- Ritalin Working / Worked
- ...but it sent my nerves through the roof and made me abnormally "active"
- Xyrem Somewhat Helpful
- Helped. Didn't do anything for the EDS
Open Back Pain
From a car accident in 9/07 and two falls around 2004 or 2005
Treatments
- Bedrest Working / Worked
- Heat Somewhat Helpful
- Hydrocodone Working / Worked
- Only the stronger ones seem to work.
- Ibuprofen Not Working
- Morphine Working / Worked
- Naproxen Not Working
- Relaxation Somewhat Helpful
- Especially if you carry your stress in your back, this is helpful
- Stretching Somewhat Helpful
- Depends how tense my back is
- Orthopedic Brace Working / Worked
- But it makes me unable to sleep for a day or two
Open Migraine Headaches
Treatments
- Avoid Certain Foods / Chemicals Not Working
- Naproxen Not Working
- Topamax Working / Worked
- Worked even faster than the doctor thought, but within a couple weeks I was covered in hives and an odd rash.
- Tylenol Somewhat Helpful
- If I catch it early...
Open Post-Traumatic Stress Disorder
Severe chronic illness since age 5, almost died. No one thought to suggest any kind of emotional therapy, and after almost 20 years, it's too deeply a part of me.
Treatments
- Art Somewhat Helpful
- Cognitive Behavioral Therapy Considering
- EMDR Considering
- Guided Imagery Too Soon to Tell
- Music Somewhat Helpful
- Paxil Somewhat Helpful
- Reading Somewhat Helpful
- Supportive Care Somewhat Helpful
- Talking Somewhat Helpful
- Topamax Not Working
- Zoloft Not Working
Open Chronic Fatigue Syndrome
Could be from many different things, but all that matters is how it affects all of us!
Treatments
Open Physical & Emotional Abuse
In my childhood. It was unintentional, but it still affected me deeply.
Treatments
- Art Somewhat Helpful
- Forgiveness Somewhat Helpful
- Music Somewhat Helpful
- Psychotherapy Somewhat Helpful
- Talking Somewhat Helpful
Open Chronic Pain
From many physical conditions, accidents, and anxiety
Treatments
- Heat Somewhat Helpful
- Hydrocodone Somewhat Helpful
- Lidoderm Somewhat Helpful
- But just a temporary fix. Sometimes it's not strong enough, but usually it helps.
- Meditation Not Working
- Morphine Working / Worked
- Oxycodone Somewhat Helpful
Open College Stress
Trying to get through college with a childhood chronic disease and many resulting physical limitations... frustrating!
Treatments
- Psychotherapy Somewhat Helpful
- Depends who your therapist is
- Sleep Somewhat Helpful
- Support from Friends & Family Working / Worked
- Always good!
Open Family & Friends of Cancer Patients
So many relatives, friends, professors, coworkers, etc. have been touched by this devastating disease.
Open Panic Attacks
PTSD and GAD with a lot of panic attacks and nervous breakdowns.
Treatments
- Klonopin Somewhat Helpful
- but covered me in hives. Not good.
- Meditation Not Working
- Paxil Somewhat Helpful
- Positive Thinking Not Working
- Psychotherapy Working / Worked
- Xanax Working / Worked
- A lot of it. But it makes me tired
- Zoloft Not Working
Open Anxiety
General anxiety disorder with panic attacks. Goes along with my PTSD.
Treatments
- Acupuncture Considering
- Breathing Exercises Not Working
- Breathwork Not Working
- Klonopin Somewhat Helpful
- but covered me in hives!
- Meditation Not Working
- Paxil Somewhat Helpful
- Positive Thinking Not Working
- Xanax Working / Worked
- Zoloft Not Working
Open Cirrhosis
Primary Sclerosing Cholangitis since age 5.
Open Bereavement
Lost so many loved ones, almost lost myself. Loss is so hard.
Treatments
- Crying Somewhat Helpful
- Getting Angry Somewhat Helpful
- Grief Counseling Somewhat Helpful
- Helping Others Somewhat Helpful
- Definitely keeps your mind off of it and redirects your energy
- Keeping Busy Somewhat Helpful
- But you can't keep busy forever...
- Music Somewhat Helpful
- Pets Working / Worked
- Poetry Working / Worked
- Prayer Working / Worked
- Psychotherapy Somewhat Helpful
- Depends on your therapist
- Reading Working / Worked
- Remembering Working / Worked
- Scrapbooking Working / Worked
- Support from Friends & Family Working / Worked
- Talking Working / Worked
- Time Working / Worked
Open Accidents
Car accident 9/2007. Set off a bunch of new health issues to my already existing chronic disease. TBI, back injury, neck injury.... etc.
Open Brain Injury
Thanks to a car accident in 9/07
Open Thrombocytopenic Purpura
From my chronic liver disease and hypersplenism.
Open Health Care Reform
Nursing student and lifetime patient who is sick of our country's health care system - from both the patient AND the health care professional's sides!
Open Depression
Type: Clinical (Major) Depressionfrom PTSD and chronic illness since age 5
Treatments
- Meditation Not Working
- Paxil Somewhat Helpful
- Positive Thinking Somewhat Helpful
- Prozac Not Working
- Psychotherapy Somewhat Helpful
- Depends on your therapist
- Support from Friends & Family Working / Worked
- Wellbutrin Somewhat Helpful
- but gave me hives!
- Writing Working / Worked
- Keeping a blog - http://www.crazymiracle.com - has really helped me. It's good just to clear your head and meet some new friends. Plus you can meet a lot of others who are like you. It's easier to get through things when someone else is on the same path. :)
- Zoloft Not Working
Open Financial Challenges
Living with several illnesses tends to add up!
Treatments
- Budgeting Somewhat Helpful
- Holding a Garage Sale Somewhat Helpful
Open Kids With Cancer
hb112204 hasn’t entered any details for this support group.Open Adoption
hb112204 hasn’t entered any details for this support group.Open Time Management
hb112204 hasn’t entered any details for this support group.
