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  • About Me

    Image of JackieRae

    JackieRae

    Female
    WI, USA
    Member since October 27, 2008

    • About Me

      My son has tuberous sclerosis and I absolutely hate it.

      My son has tuberous sclerosis and I absolutely hate it.

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  • Support Groups

    • Close Tuberous Sclerosis (TSC)

      My son was diagnosed with TSC in December of last year. I spent Christmas Day with him in the children's hospital, begging for answers. I have done enough research on this disease to know I know enough. he's doing amazing and I should be thankful but I can't help but feel like my life totally sucks.

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