I need a hug
February 8, 2009 6:53pm
The last few days have been absolutely horrible for me and my dad. I finally gave up my apartment so that I could move in with my …
Ewereka 
3:56pm, February 13, 2009
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Ewereka
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trying to make this a worthwhile experience
October 28, 2008 9:50pm
Having AIP is a pain in the...well many places, but I am trying desperately to make something good come of it. I have gotten involved in …
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Flower
Sorry to read how bad your porforia is, mine is kinda managble. It usually only gives me a lot of blisters on my hands if I'm in the sun too much. And i'm usually in the sun, there is no way I'll stop riding my bike or being outside its just something I live with but it can get pretty gross at time's to the point I have to wear gloves all the time due to open wounds or blisters. I hope they have a answer for you in the near future. Best to you, Dave
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Close Porphyria
Type: Acute Intermittent Porphyria (AIP)I was diagnosed with AIP about 30 years ago. Since then I have lived in a hospital for 5 years, a nursing home for 6 years, tried carrying a glucose IV in a backpack and been in 6 research projects. It has been a long haul. There has been some permanent damage to nerve endings, etc. and I still have attacks almost every 6 weeks or so. One of my cousins' wife has done our family tree and claims that we are related to King George. Long live the King... ;>}
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