Hi there
my name is shannon i am a mother of 3 1 boy and 2 girls and expecting (lastone) so im hoping by joining this site i will get more information and more support with FragileX. i will now explain my situation, when i was 16 years of age i gave birth to a little boy name braden.. yes i was very young and because of that family services came and apprehanded him at a very young age, as time went on and i was still able to see him we started noticing that his fine motor skills werent where they should be and different things that he wasent doing that he should of been doing at his age, he was then diagnosed with Fragile X , i cant explain the feelings that went through me and my mind and emotions. i felt guilty and to this day in some ways i still do even tho i do have other children, although ive been to a genetist for both girls and was told how everything works i still cant help but feel guilty or like this is all my fault and that in technical terms i gave this to him... ive lived with this guilt for some time and im not sure if anyone else is going through the same thing iam or was in my feet as far as my emotions and thoughts but being support group im hoping im not alone with these feelings. just to let everyone know also noone knew that this gene was carried through the family, as my brothers and sisters, aunts and uncles are all fine... this is onther anger that im trying to deal with and not sure how to... i dont understand why this has happened to me and why this gene decided to effect my children and why we couldnt of known about this sooner... i hope this does not sound offencive to anyone nor selfish cause i dont mean it that way at all just need some understanding and support regarding my feelings.. as far as my girls go i never tested with my oldest but did with my youngest daughter and she is 100 percent fine shes not a carryer nor effected and i plan on testing this one also... also iam full mutation to fragile X but genetist is unsure if i was effected by it but am obviously a carrier.





