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ddeadred
Female, 44, Cow Country, OH
"You know, when you ADVERTISE a Black Friday deal, you should have PLENTY available... Oh, well, should have gotten up at 5 a.m. I guess..."
6:37pm
But you look so GOOD... Mood
Saturday, September 5, 2009 | An Inspiring story

But you look so GOOD...

 

Who are the people with Multiple Sclerosis?

We are your parents, your children, your brothers and sisters; we are the person down the street; we are that lady or fellow who may walk a little "funny" at the grocery store. We are the people that you "tsk, tsk" over because we might look "too good" to use a handicapped parking space. We are the folks who may not be able to get out to the Church or
Temple every weekend; we are your peers; we are human beings.

We are the face of Multiple Sclerosis. A face that is nearly every ethnicity; that comes from nearly every country, that does not discriminate by social standing or class or financial or educational background or language or religion. We are both able to walk unassisted and use canes and walkers and wheelchair users; we jog and swim and partake in sports; we are housebound, we use scooters; we need respirators. We are everything in between. We are visually impaired and we are not. We are at every level of physical ability.

Of course, we "look so good" while we're doing it. We hear that phrase every day of our lives. Sometimes that phrase is meant as a compliment and sometimes it is meant to hurt or meant to shame us into doing something of which we may not be currently capable. We may be able to do that something tomorrow, though, or next week; Multiple Sclerosis is like that. We are like that.

Some of us are hearing impaired; yet all of us occasionally have people talk louder to us. "HOW
ARE YOU D-O-I-N-G????" they'll scream, speaking to us as though we were either hearing or intellectually impaired. "YOU LOOK SO G-O-O-D!!!!"

Of course we do. Thank you very much. We are, in fact, the very best looking people in the handicapped community. We have secret beauty pageants every year, to decide which of our number is the absolute best-looking. Billy Crystal emcees, as his character Fernando; "...and you look MAHVELOUS my dear; absolutely M-A-H-V-E-L-O-U-S..."

We are brave. We are fragile. We want to live, and we want to end it all. We look for support and we want to stand alone. We are Everyperson. We are the People with Multiple Sclerosis. We are People, Just Like You....

 

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Comments

  1. muc7452

    Omg Cj reading this is so true with the people with this disease.. That is exactly how I feel too.. Thanks for sharing this hon... xo Mary :-)


    muc7452

  2. Chris1981

    Hi angel Cj. :) Thank you so very much, for sharing this with us. :) It's wonderfully heart touching. :) You have taught us about MS, and what it's like to live with MS, and hope you cope with the illness, and still continue on with your days, living, and celebrating each day to the fullest. :) i admire you, and your spirit, and drive for life. :) You are an amazing person, who gives us all hope, strength, and inspires us, to never give up, and to keep on, keeping on. :) we love you so very very much. :) we are honored, to be your friends. :) We send our love, warm friendship wishes, caring thoughts, many blessings, and lots of super big happy friendship hugs, from CT. :) Wishing you all a nice relaxing, and peaceful sunday. :)


    Chris1981

  3. samzlost

    I think I have a few people to share this with. Visiting family and friends that really haven't seen me in a long time, love, love, love telling me how great I look. Thanks CJ! XOXO


    samzlost

  4. ddeadred

    Darlings, I did not write this... I really don't know who did--pulled it off a friend's Facebook wall (you all remember Julz... it was from her)...

    It did make a tremendous amount of sense to me!!! xoxoxo Cj


    ddeadred

  5. GrammieP

    I love this!! Are you on FB? Me too, lets connect.

    ooxx


    GrammieP

  6. janiM

    Thanks for sharing CJ, very powerful words.


    janiM

  7. hunterD

    THANK YOU FOR SHARING THIS. WHERE ON JULZ`S PAGE DID YOU FIND IT? IT DOES HIT THE NAIL RIGHT SQUARE ON THE HEAD. LOVE YA, DAVE


    hunterD

  8. lillyrose

    thanks for sharing, my deliteful friend, now i'll share this with a few friends xoxoxo


    lillyrose

  9. jav

    I LOVED IT...IT SAYS SO MUCH ABOUT US!


    jav

  10. Quietnlikeit

    Oh.........I just love this!!! Thank you for sharing it. It says it all I think.
    xo


    Quietnlikeit

  11. tweety68

    loved it ..it hit the nail on the head in so many ways..


    tweety68

  12. LynneC

    I hear that, too. Seems that, as long as we don't "look" sick, then we must be ok, huh?! Little do THEY know! Some diseases, like my CFS and your MS, just don't always show on the outside. But they DO mess you up inside, don't they?


    LynneC

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