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  • About Me

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    CurlyLisa

    Female, 47
    Bellingham, WA, USA
    Member since October 17, 2008

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    • I’m With You

      From kellyelise5 November 14, 2008

      Hey Lisa - here is my email address - kellyelise5@aol.com - you have a much better chance of contacting me that way as I (yikes) only check this site maybe once a month (if that). C-ya! Kelly

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      From kellyelise5 November 14, 2008

      Hi Lisa: Sorry it took me so long to respond - I rarely check this website. I also belong to CMLHope with yahoo groups. I just went to the doc yesterday and they have to take me off the Gleevec due to severe side effects (I believe I was not metabolizing it fast enough and it built up to toxic levels). So, I will no longer be in the clinical trial and they are going to put me on Sprycel. I hope that works just as well as I had reached complete molecular response (yippeee!). The Gleevec worked very well for me, but, the side effects became too much (vision disturbances, memory loss and headaches). I found out that hematologically - I was in complete remission after the first month of therapy (they thought my lab was wrong - but, they weren't). Take Care! Kelly

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