Our lives are such a delicate balancing act most of the time. The surgery definitely knocked me over. It wasn't bad enough that the inflammation was there, but the doc gave me antibiotics FOR the possibility that I might have a 2ndary infection. And the antibiotics gave me a yeast infection. And while I was fighting the yeast infection, I caught a cold. And from the cold, I got pink eye (conjunctivitis)..... I am waiting, patiently getting rest and giving my body a chance to get back on even footing, but it's not coming easily.
My cold, yeast infection, and pink eye are now gone. BUT.....now my immune system is acting up again. I'm back to having twice daily fevers, endless joint pain, and fatigue. I'm holding my breath hoping that my body will go BACK to its previous "well state" once things settle down. But I can't help being saddened again by the return of my symptoms. I'm been sick for enough years to be realistic about this disease. I know intellectually that nothing has lasted for very long to keep me well before and that it would only be a matter of time before this happened again, but I was hoping for a little MORE GOOD TIME. And that the good time will return.
And so now I am waiting, watching Spring beginning, and waiting.
Tracy
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Well as many of you know, I suffered a major inflammatory immune reaction to the stitches. I was write in the previous journal entry that this wasn't normal. But unfortunately, all I can do is ice it, keep a pressure bandage on it, and take more pain pills.
You'd think with the amount of immunosuppressants I'm taking daily that I'd be UNABLE to launch an immunoresponse, let alone a big one like this. But I should have known that I'm not immunocompromised (and therefore don't have an infection) because my entire household was sick last week and I WASN'T. When I'm immunosuppressed, I catch everything. Just can't win either way. It's a very careful balance we all have to walk to keep from catching everything while keeping our disease in check....
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Tracy,,hugs, sweetheart! God, what the heck is goin on with this reactivity? Allergy to the stitches. Are they nylon sutures by any chance? Or whatever, it does sound like a real pain ( as if you don't have enough already). I am really sorry this is an added aggravation. I have not been able to write much with so much going on here at home and the small job I have during the week. So most of my reading and posting is limited to my journal entries when I have even a chance to write that. I have missed so many friends that I'll likely lose some eventually due to my limited writing. I have to look up this Kineret as I'm not familiar with that one. But for now, I sure hope this is a passing thing, and figured you'd be too much in pain to answer any messages. So within my own limitations and yours, I lost some recent contact with youl. But your healing is the main thing now, and I wish you better days very soon, and hope those sutures are out by now or soon will be. It sounds like maybe you have some contact allergy with those things, and I have myself, even without lupus, always been reactive to nylon. Others may too be allergic to things like latex and sutures commonly used in medicine. Whatever the cause, hang in there. I wish I knew something to offer, but am not sure that any answer is better than getting those sutures out. I hope it occurs soon. Did the surgery go OK otherwise? Take care of it, hon, and keep me posted when you are able, but don't rush things. I understand you are in pain and don't need to be typing much right now. Huggs, and much affection, Rick (Goliad)
My hand is aching where the stitches are. The funny thing is that it didn't hurt the first few days after surgery and now, a week later, it's really painful again. My hubby says to hang in there, it will get better.
And, on top of that, my 12 year old has a virus complete with a high fever and rash. I've cancelled my plans for the day so that I can stay here with her. It's times like this that you need your mommy.....
The Kineret is STILL working. Except for my thumb, i feel pretty good. I can't help but worry that it won't last, just like everything else....
T
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What happened to your hand? I missed something here. Well, now that I know something did, I am accountable LOL So I'll say -Your husband is right! I'm glad the Kineret is still working too. I'm sorry your child is sick. It's hard to know our kids are suffering. I hope it passes soon. Take care! :) Cheryl
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For those who missed what's going on, I had a release done on my Trigger Thumb. The doc said it was the WORST Trigger Finger he'd ever seen. I've still got my stitches, but today my hand has been really hurting. It didn't hurt this much the day of or after the surgery so I'm not sure what's going on.
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Sorry to hear you now having problems after surgery! I hope you hubby is right & it get better. Did you call the doctor about it? Sorry that your child is ill on top of it & i hope she gets better soon. When there sick they really do need mom......I don't think it matters how old you are.....when your really sick we still need mom......
Take Care my Friend........Love & Big Hugs, Deb
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November 2008 |
Saturday, 11/08
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Oh no :-( My heart goes out to you. I am just know getting over my flare. The joint pain was SO BAD for about 17 days ..... with the fever & migraines. It will get better, but when you are going through it, it feels like it will never end.......If i were there i would give you a Big Soft Hug & help you out or just be there to listen.
It is to bad that you had to go through ALL of that from surgery for you hand.
Take Care, Love & Hugs, Deb
heick
Isn't it something how an invasive procedure is all it takes to throw our bodies completely out of whack! To someone without our crazy diseases it would be a routine thing and done and over with quickly. For us it goes on and on.....I really hope that your body will calm back down and get back to that good place you were in before it. I feel bad for you. I have been suffering lately too and it sucks. And I didn't even have surgery on top of it! Well, stay positive and strong. You'll get through this. :) Cheryl
BeautifulDreamer