not today-lol
October 27, 2009 3:48pm
I took a nap on the couch.
Progress
25 %
truebansidhe 
11:11pm November 15
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About Me
truebansidhe
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About Me
I have Ehlers-danlos, bursitis, osteoarthritis in 3 joints, and DDD of total spine. Lots of pain every day-some better some worse. I cannot stand or walk for more than a few minutes without ending up in extreme pain-it has sent me to the ER several times, but now my local hospital won't help any more for the really bad days.---add scoliosis to the mix now too...
I have Ehlers-danlos, bursitis, osteoarthritis in 3 joints, and DDD of total spine. Lots of pain every day-some better some worse. I cannot stand or walk for more than a few minutes without ending up in extreme pain-it has sent me to the ER several times, but now my local hospital won't help any more for the really bad days.---add scoliosis to the mix now too...
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Interests
I lke to read, spend time with my little one, and play video games. There is lots of other stuff I like, but can't do anymore.
I lke to read, spend time with my little one, and play video games. There is lots of other stuff I like,
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Recent Activity
Recently:
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4 hugs received, 3 hugs given
Monday
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truebansidhe gave ChronicIL a hug 12:47am
Thanx! I do get to skip one of them-I don't need to wite that syupid 8page final paper for my elective,…
November 15
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truebansidhe updated their status 11:11pm
New meds are helping, but I really hope the side effects go away.…
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truebansidhe changed their mood to Bad 11:11pm
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truebansidhe gave ChronicIL a hug 11:10pm
Thanx for the hug. I won't be on much for about 3 weeks-finals coming up.…
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truebansidhe gave olddog2 a hug 12:44am
Thanx for the hug. I am not too bad right now- just very busy cramming for my finals in 3 weeks. I can…
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Journal
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Thinking about things...
October 9, 2009 12:45am
I've been thinking back to about four years ago when I had pancreatitis, and I think I would rather have another 3-month stint of that than …
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Still looking for a decent doc that takes medicaid
October 7, 2009 4:19pm
I found a Doc I would like to see, but I don't know if my PCP will go for it. There is also a chance that this doctor will not see me, as …
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insomnia...
October 3, 2009 5:49am
I hve only gotten about 5 hours of sleep in the last two days... too much pain too sleep. I have very little hope of any relief anytime soon, and the …
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Hugbook
Flower
Beautiful flowers for a beautiful person. Hope you are enjoying your new water bed. Hope there are no leaks LOL. Hope things are okay with you. Please take care and herer for you always.
Love and best wishes
Wendy-
Go For It
I hope your finals go well!
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Chocolate
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Hug
Hey friend - long time no chat. I hope this hug finds you doing well!
Katie 
Hug
Hi Hon
I looked up EDS doctors in the country and got this for Ohio
Dr. Dennis Bartholomew - Columbus, Ohio
Dr. Thomas Burrow - Cincinnati, Ohio
I found this sight that lists them throughout the country http://dyingtolive.info/doctors.html
Hope this helps! :) CathyM and Otis
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Photos
truebansidhe hasn’t uploaded any photos yet
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Support Groups
Close Chronic Pain
Treatments
- Flexeril Not Working
- no help at all
- Heat Somewhat Helpful
- on mild days, sometime a very hot bath can help with some of my pain
- Hydrocodone Not Working
- no help
- Naproxen Not Working
- no help
- Neurontin Not Working
- tried it, no effect at all
- TENS Not Working
- put me in so much pain that I will never allow it to be tried again
Close Ehlers-Danlos Syndrome
truebansidhe hasn’t entered any details for this support group.
