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  • About Me

    Image of truebansidhe

    truebansidhe

    Female, 32, Divorced
    Findlay, OH, USA
    Member since October 12, 2008

    • About Me

      I have Ehlers-danlos, bursitis, osteoarthritis in 3 joints, and DDD of total spine. Lots of pain every day-some better some worse. I cannot stand or walk for more than a few minutes without ending up in extreme pain-it has sent me to the ER several times, but now my local hospital won't help any more for the really bad days.---add scoliosis to the mix now too...

      I have Ehlers-danlos, bursitis, osteoarthritis in 3 joints, and DDD of total spine. Lots of pain every day-some better some worse. I cannot stand or walk for more than a few minutes without ending up in extreme pain-it has sent me to the ER several times, but now my local hospital won't help any more for the really bad days.---add scoliosis to the mix now too...

    • Interests

      I lke to read, spend time with my little one, and play video games. There is lots of other stuff I like, but can't do anymore.

      I lke to read, spend time with my little one, and play video games. There is lots of other stuff I like,

  • Recent Activity

    Recently:

    • 4 hugs received, 3 hugs given

    Monday

    • truebansidhe gave ChronicIL a hug 12:47am

      Thanx! I do get to skip one of them-I don't need to wite that syupid 8page final paper for my elective,…  

    November 15

    • truebansidhe gave ChronicIL a hug 11:10pm

      Thanx for the hug. I won't be on much for about 3 weeks-finals coming up.…  
    • truebansidhe gave olddog2 a hug 12:44am

      Thanx for the hug. I am not too bad right now- just very busy cramming for my finals in 3 weeks. I can…  
  • Journal

    • not today-lol

      Mood October 27, 2009 3:48pm

      I took a nap on the couch.
    • Thinking about things...

      Mood October 9, 2009 12:45am

       I've been thinking back to about four years ago when I had pancreatitis, and I think I would rather have another 3-month stint of that than …
    • Still looking for a decent doc that takes medicaid

      Mood October 7, 2009 4:19pm

        I found a Doc I would like to see, but I don't know if my PCP will go for it. There is also a chance that this doctor will not see me, as …
    • insomnia...

      Mood October 3, 2009 5:49am

      I hve only gotten about 5 hours of sleep in the last two days... too much pain too sleep. I have very little hope of any relief anytime soon, and the …

    Read Journal

  • Hugbook

    Give truebansidhe a hug



    • Flower

      From Panadeine Thursday

      Beautiful flowers for a beautiful person. Hope you are enjoying your new water bed. Hope there are no leaks LOL. Hope things are okay with you. Please take care and herer for you always.
      Love and best wishes
      Wendy

    • Go For It

      From ChronicIL Monday

      I hope your finals go well!

    • Chocolate

      From ChronicIL November 15

    • Hug

      From olddog2 November 15

      Hey friend - long time no chat. I hope this hug finds you doing well!
      Katie

    • Hug

      From OtisandCathy October 22

      Hi Hon

      I looked up EDS doctors in the country and got this for Ohio
      Dr. Dennis Bartholomew - Columbus, Ohio
      Dr. Thomas Burrow - Cincinnati, Ohio

      I found this sight that lists them throughout the country http://dyingtolive.info/doctors.html

      Hope this helps! :) CathyM and Otis

    Read Hugbook

  • Support Groups

    • Close Chronic Pain

      Treatments

      Flexeril Not Working
      no help at all
      Heat Somewhat Helpful
      on mild days, sometime a very hot bath can help with some of my pain
      Hydrocodone Not Working
      no help
      Naproxen Not Working
      no help
      Neurontin Not Working
      tried it, no effect at all
      TENS Not Working
      put me in so much pain that I will never allow it to be tried again
    • Close Ehlers-Danlos Syndrome

      truebansidhe hasn’t entered any details for this support group.
  • Groups

  • Friends


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