Journal

Did you know that both fibromyalgia and dystonia are on the list for differential diagnoses for the above? It's a fancy way of saying IAIYH.

The percentage of people who have this disorder is exceedingly small but it appears to me the doctors have no trouble slapping this label on women especially. One of the signs of the disorder is to deny that you have it! How cute is that?

In my research I have found two tests that can deny or confirm this dx and yet, while rather simple, doctors haven't used it but rely on their own "ignorance" and lack of pressing to find a physical cause. Yes, I deny having this as I don't fit many of the requirements. But by denying it, the doctors are hearing me say I have it!

I know that I know that God healed my emotional life from birth to August of last year. I truly believe that if my dystonic posturing was from conversion disorder, He would have healed that as well. I tell the doctors this and now I'm really classified as a nut job.

I was getting upset about this news from the doctors until God reminded me that it is only man saying this and that I know the Truth. That restored my peace. I'm a bit churned up right now as I rehash this but as soon as I am done writing this, my peace will be back.

My experience with God is the simpler the better and so I have decided to simplify my life - get rid of the clutter and stick to what is important and fruitful, concentrate my efforts in a couple of undertakings, and do it well. I have been all over the map on blogging and I must find and stick to one or two. I also have a couple of web sites and I need to reduce it to one. I need to study how to draw traffic to my web site. I have the material but I haven't taken time to read it.

I need discipline in my life so I can accomplish what I am able. I love to crochet, garden, swim, and write - proofread and copywrite. I also need to clean my house - nothing that thrills me and I usually wait and try to do it all in one day and then the next day is a definite day of rest!

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 The sun is shining and it is warm. This is a miracle in the Northeast.

I have made a choice. I have decided to be happy and shake off the ugly things that attach themselves to my body's magnet. Since I had a healing of my emotions last August, I have been learning what I need to do to stay that way.

My choices are important to my state of mind. I have chosen to accept my lot in life and stop giving the negative things so much attention. Since I have pain any way, I have decided to stop nursing this "sick" body and do the things that give me pleasure without overdoing terribly. I have been gardening and I do so love it. It hurts my foot but the pleasure is greater than the pain. I'm going to pool therapy twice a week and am benefitting from it. I am painting walls - I nevr thought I'd be able to do that again. A friend came to help and we had a good time. I even went so far as to clean and wash all the hardwood floors in my house. I washed windows. I am living. I am writing. I am proofreading others' works for money. I taught for twenty-seven years and have updated my skills by taking a course. I am living.

My God wants me to enjoy life. He wants me to have a good time on my journey here on earth and, with his help, I am learning. I mess up but I am quicker to recover than in the past. I don't blame myself or feel guilty. I simply ask for forgiveness and move on with a change of attitude.

http://alittlefaith.blog.com

I am so disturbed with our doctors and whole medical community. 

Two weeks ago I had a colonoscopy with MAC anesthesia.  I came out of the anesthesia with shortness of breath and a band just below my sternum that was a heaviness.  They took the O2 mask off.  They didn't notice I was breathing through my mouth trying to get air in.  My husband was brought in and he saw immediately I was struggling.  I tried to tell him - he got a nurse who made a thousand excuses and finally put oxygen back on.  By that time my left leg and foot were numb and stiff.  This spread to my right foot and soon I had no feeling from my waist down.  They called the doctor who was in another hospital.  She came and sent me to the ER - time elapsed one half hour.  I was only a long corridor away from the ER!

I had the sensation my bladder was about to burst but I couldn't go.  I finally was able to ask for a Foley.  They were running around about my heart being different from the EKG I had prior to the procedure and they needed to contact my cardiologist.  Meanwhile someone came to do a chest x-ray.  He asked me to lean forward and that's when I discovered I couldn't move at all from my neck down.  The nurse lifted me off the bed, he put the plate behind my back, she put me down.  X-ray taken the reverse process happened.

I was admitted to the hospital for two days.  I never saw a doctor until I was discharged.  Nothing was ever said about my "paralysis".  It did leave after about three hours.

I wanted my medical records as I was scheduled for surgery the following week.

I wanted to talk to the anesthesiologist.  The stuff I got didn't give me the info. I needed.  No where was the paralysis recorded or the fact that a Foley was used.

There was no way to get in touch with the anesthesiologist.  I made a stink about not getting all my records and was assured I would have them.  They came the day after my next surgery!  Big help.

For anesthesia they decided to not use profonol - just versed and fentynal. I came out of that screaming with chest pain like I never experienced before.  They kept telling me my heart was all right and that could have been but my pain was saying something was wrong!  They gave me nitro pills - 3 in all and a shot of morphine.

I was in a surgery center so they had to call the ambulance and take me to the hospital.  My troponin level was 0.54.  Out came the nitro paste and all the other stuff.  My dystonia was set off by something and that took a while to leave. I spent another two days in the hospital.  This time they did a heart cath - not too pleasant.

The final outcome - nothing wrong with my heart, it was absolutely perfect.  All the tests I've had the last five years - all wrong.  All the EKGs that were abnormal were abnormal due to poor lead placement.  I don't know what excuse they would give for the ECHOs that showed first trace and then mild regurgitation and aortic insufficiency.

The doctor said the next time I had chest pain I should realize it is not my heart and just ignore it!  And then you wonder why more women die of heart attacks than men and many do because they don't go to the hospital in time!

I have to go back and see this man in two weeks.  God has a work to do in me because I want to let him know what a jerk I think he is and the harm he is handing out all the time thinking so highly of himself and his polished appearance and talented way with women. He actually thought he was doing me a favor.