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Brayc11
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I will.be glad to help you in any way I can , as you know by reading my profile that Fred was diagnosed at age 65 and it started in his eyes mainly just the right eye after he was finialy diagnosed the Drs said he had MG they started him on Mestinon and it helped his eye he was tired a lot but then while in the hospital he got to the point where he could not swallow so it started effecting his palat in his mouth it wasn't working, we were.really getting scared now so after a million test they put us thru, and meds they would try then came the feeding tube thru the stomach this was really getting to be a nightmare because he was a big strong man who had worked in conctructon all his life we owned our own company.he was not one to complain so we were really getting scared, after weeks in on hospital learning how to care for the feeding tube and learning how to suction his throat out when he got chocked our life was begining to change big time then we go home to start living our new life later he was getting worse as now he was getting where he couldn't speak his words where you could understand him and he was walking on a walker getting very febblen, so.now we are sent to South West Medical Univ. In Dallas Texas we were there for 3 weeks they begain Plasma Exchange after several of thoes he begain to get better later after 6 months the feeding tube was removed he was also put on a drug called Cellcept so for the next 5 yrs we had to be very careful he did stay tired a lot the Drs told him when he first wakes up that's when he would have the most strenght and he would be better to do things he wanted to do then , he was also taking prenisone, you probably didn't want to know all this but I have had 5 yrs of learning about this awful disease and I've learned it affects people differently he had very little problems with his eye after he started mestinon. The good thing with you I feel is that you are young and you can probably be controlled by meds I hope I've not talked to much but if you want to ask me anything else please let me hear from you I'll not forget you . Talking to people is keeping me in one piece, I'm so damn mad that this MG took Fred from me , as I remember back now years ago he always had some problems with his throat but never complained if only we could have caught this earlier I might still have him , please let me know how your doing and I'm sorry if I talked to much.Ill be thinking of you. . KAT .
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I hope you feel better!!!!
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Close Myasthenia Gravis
Ever since highschool my eyes were always tired. I wear contacts but my eye doctor said my eyes were healthy. Then I noticed whenever I drove long distances on the highway I noticed i couldn't keep my eyes open. All I wanted to do was pull over and sleep or take a nap when I got to my destination. I'm finally beginning to get treated for mg but it really affects me because I could lie down and rest on and off all day. I'm not a lazy person so this is driving me crazy.
Treatments
- Mestinon Working / Worked
- It doesn't help my eye fatigue. I'm still dragging through the day. The doctor up my dose from 2 60 mg. tablets a day to 4 60 mg. I don't really notice i difference. It works a little better than if I wasn't taking anything. I do have to eat something when I take it.
