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  • About Me

    Image of sharon39

    sharon39

    Female
    GBR
    Member since October 9, 2008

  • Recent Activity

    • Sorry, there is no activity in the My Activity feed.
  • Journal

    • Tired

      Mood October 11, 2008 7:20am

       

      Dear Journal

       

       

      Gorgeous day here again.... midday and still not dressed... not enough energy to care today. Flared up , bloated and …

    • Immunity

      Mood October 10, 2008 6:57am

       

       

      Beautiful , sunny morning here ... fresh autumn day.. love this time of year - the sort of day where I feel motivated to do loads of …

    • today

      Mood October 9, 2008 3:40pm

       

       

      Today not dissimilar from yesterday as far as pain goes... lately I feel like Eeyore, kinda blue and I have a definate flattened mood, …

    Read Journal

  • Hugbook

    Give sharon39 a hug



    • Hug

      From BeautifulDreamer October 24, 2008

      Hi again. How are you? Are you feeling any better? Here's a hug for you! :) Cheryl

    • Hug

      From BeautifulDreamer October 16, 2008

      Hi! I was thinking about you this morning. How are you doing? I hope well, but let me know! :) Cheryl

    • Hug

      From BeautifulDreamer October 11, 2008

      Hi! I have RA and Lupus also. I was diagnosed with RA at 28 and SLE at 39. I can tell the difference between the two. When the RA is acting up I am more stiff and achy and when Lupus is flaring I am more tired and pain is more severe in my joints and muscles. I am on 6mg of Prednisone, Celebrex, Enbrel inj., and Kadian for pain. I also get IV's of vitamins and minerals weekly which has really helped both diseases! I LOVE Eeyore too! I think he just looks like how I feel.LOL Welcome. I am in the Lupus group. If you ever want to talk I am here. :) Cheryl

    • Hug

      From PolarBear427 October 9, 2008

      Hi Sharon39, welcome to the MCTD group, and to this site. I also have UCTD and sound a lot like you, from what you said in your journal, lol. Would you like to be friends? Sounds like we have things in common, I feel like Eeyore a lot too, especially the last few days, lol! I hope you are having a nice evening. Big Hugs, Sheri

    Read Hugbook

  • Goals

    Progress

    0 %

    Goal End Date is Jan 30, 09 302 days ago.
  • Support Groups

    • Close MCTD

      sharon39 hasn’t entered any details for this support group.
    • Close Lupus

      Diagnosed 3+yrs with UCTD, mixture of lupus and RA - looking for ways to manage inflammation better, and avoid flare ups

      Treatments

      Methotrexate Somewhat Helpful
      Has helped to reduce some inflammation at times
      Plaquenil Not Working
      didn't help at all
    • Open Migraine Headaches

      Diagnosed 5+years ago and looking for new or different ways to manage pain.

      Treatments

      Acupuncture Not Working
      made me feel worse
      Aspirin Working / Worked
      helps sometimes but can give stomach aches
      Avoid Certain Foods / Chemicals Considering
      Caffeine Working / Worked
      sometimes use alongside painkillers to boost their effect
      Maxalt Working / Worked
      currently using during every attack - works most of the time but side effects are quite bad
      Psychotherapy Working / Worked
      used to help manage feelings around paindepressionangervery long process very expensive but has reduced depressive feelingsthoughts.
    • Open Fibromyalgia

      Diagnosed about 3 years ago, and hoping to learn more about disease management etc

    • Open Rheumatoid Arthritis

      Diagnosed 3+yrs ago with Lupus and RA and currently looking for more ways to support myself and reduce inflammation/disease activity

      Treatments

      Hydroxychloroquine Not Working
      Methotrexate Working / Worked
      helps to reduce inflammation, horrible side effects
      Pain Management Clinic Working / Worked
      Not very helpful
      Plaquenil Not Working
      No difference/reduction in symptoms
      Prednisone Working / Worked
      intramuscular injection given whenever I get to see rheumy - has almost instant effect but worry about side effects
      Voltaren Working / Worked
      not strong enough and caused some stomach irritation
  • Friends


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