Journal Entry for January 28, 2009
January 28, 2009 5:19pm
Goal Completed on Jan 28, 09
Mammax3 
6:03pm
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About Me
Mammax3
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Journal
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The University of MN hospital and staff are horrible
January 24, 2009 10:58pm
I will never again take Tim or any of my children to the University of Minnesota hospital. I'm still so upset about what happened Friday …
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Journal Entry for November 11, 2008
November 11, 2008 5:30pm
Today I left work early - in an ice storm- to get my son up for his RN home visit tonight. He has been in bed all day again. It takes him …
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Hugbook
Hug
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Prayer
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Hug
Thank you very much for your kindness, you are very sweet. I hope all is well with you and your son :)
Prayer
Im so sorry to hear how bad his HS is. My daughter has downs and HS but not as bad as your son's. You're in my prayers that the surgery goes well and his healing time is fast and incident free. Just curious what is he doing about school? In case you didnt know he can do school on line and then he wouldnt have to worry about missing classes, do it at his own time schedule. I have another daugther that has some issues and is doing online highschool. Good luck Kris
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Prayer
Keeping you guys in my prayers!!
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Support Groups
Close Hidradenitis Suppurativa
I am a mother of a 17-year-old male who has had HS for about 2.5 years. He has tried multiple antibiotics, Accutane, laser treatments, and now is on Enbrel. He has been in the hospital many times at the Mayo Clinic, the U of MN, and Regions Burn Unit. He is currently in the hospital after having wide excision of both armpits on April 3. Skin grafting went well, but very painful at the doner site. Will have excision of the lower body around May 5.
Treatments
- Accutane Not Working
- Made things much worse.
- Bactrim DS Not Working
- Cured the inderlying infection, but no help with HS.
- Clindamycin Not Working
- Doxycycline Not Working
- Enbrel Working / Worked
- Has been the only thing that has worked. Not working as well as it did in the beginning.
- Hospitalization Working / Worked
- Was in the hospital 6 times in one year - 83 days. Constant treatment really helps.
- Hydromorphone Working / Worked
- Needed to get out of bed due to pain.
- Keflex Not Working
- Phototherapy Not Working
- Too painful to continue. 2 treatments with no results
- Surgery Working / Worked
- Wide area excision of both armpits and skin graft from thigh.
Close Parenting Toddlers (1-3)
I have a 2-year-old and a 3-year-old. They are almost 10 months apart. My little boy just turned 2 in April. My little girl turned 2 in February.
