Join Now
Karynmrn 
2:49pm, October 24, 2008
I am writing today for the first time. I never really thought about writing about my feelings about living with RA. I really have just been living with it, or so I thought. Over the past couple of days I have had a flare that is probably the worst I have ever had. That has triggered me to begen to seek out information and support on the web. I am discovering that Ihave been living in a world of denial. Being an RN, I thought that I was well informed but that is nit the case.
Comments
I think that I need to stop feeling sorry for myself and just snap out of it. I need to realize that I am goin gto have good days and bad days. Right now the bad days are outnumbering the good days.
Karynmrn
Still spending more time lying down than standing up. Having lots on ankle and wrist pain. It is very difficult to sleep at night. Even being off work and taking it easy is not helping too much. I did go to the store yesterday and make Tortilla soup which is one of our favorites.
Karynmrn
I shared with some family member with whom I have not shared that I have RA. They were very supportive. There are still people who don't know and I need to tell. I realize that I don't have a terminal illness, but I am afraid of what people will say. Why is it so difficult to share? What am I so afraid of?
Karynmrn