Living with RA
October 8, 2008 6:59am
I am writing today for the first time. I never really thought about writing about my feelings about living with RA. I really have just …
Karynmrn 
2:49pm, October 24, 2008
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About Me
Karynmrn
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About Me
I am an RN who was recently diagnosed with sero-negataive RA. The truth is that I have probably had it for 4-5 years before x-ray and MRI confirmed the diagnosis.
I am an RN who was recently diagnosed with sero-negataive RA. The truth is that I have probably had it for 4-5 years before x-ray and MRI confirmed the diagnosis.
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I understand how it can be like at work...!
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Hi, Welcome to our group. You will find that it is a great place to be. Your story is similar to many of us, definitely, similar to mine. I chased doctors for a full year, while my disease was deteriorating, without getting a diagnosis. At the end, I diagnose myself with the help of a great South African website and got my Rheumatologist to provide me with an "experimental" treamtnet with Prednisone. Within one hour all seventeen joints that were affected by the disease at that time were back to normal. For the first time in months, I had no pain. A week later, I was "formally" diagnosed by the doctor with sero-negative RA and placed on the most aggressive treatment that I could get (a combination of Prednisone and Methotraxate). My response to the treatment has been phenomental. Seven months later (today), I am pain free, active (I walk for one hour every day) and I had no side effects to the treatment. You will be better soon too. Just do your research, insist on the best treatment you can get, and keep being active and optimistic. Hugs. Me
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Close Rheumatoid Arthritis
I was recently diagnoses with sero-negataive RA. I have probably have had it for 4-5 years, but since alll the labs tests I had were negative for RA, I fnally had x-rays and MRIs to confirm the diagnosis.
Treatments
- Humira Not Working
- I had 2 GI bleeds and the doctor was unsure if Humira was a cause
- Kineret Too Soon to Tell
- Have been taking i for 6 weeks
- Methotrexate Not Working
- Possib;e MTX was a causiive factor in my GI bleeds
- Prednisone Working / Worked
- Lyrica Working / Worked
- Hust took my first dose last night
Close Migraine Headaches
I have been a migraineaur(sp) for at least 15 years, along with many other maladies.
Treatments
- Amerge Working / Worked
- Stopped working after awhile
- Aspirin Somewhat Helpful
- Avoid Certain Foods / Chemicals Working / Worked
- I did a diet from the book the Food Allergy Cure and had success for 2-3 years. I am not sure what happened.
- Axert Working / Worked
- Stopped working after awhile
- Imitrex Working / Worked
- Stopped working after awhile
- Inderal Working / Worked
- Had to stop due to thyroi issues
- Maxalt Working / Worked
- Stopped working after awhile
- Relpax Working / Worked
- Stopped working after awhile
- Topamax Working / Worked
- am taking 150mg QD now and it seems to be working well
- Zomig Working / Worked
- Stopped working after awhile
Open Graves' Disease
I was diagnosed with Graves' Disease in 1999. After PTU, Tapazole and 2 radiactve iodine treatments, my TSH was still vea difficult time regulating my thyroid hormones. I have to change my Synthroid dose about every months.
Treatments
- PTU Not Working
- Had an adverse re.action
- Tapazole Not Working
- Thyroidectomy Working / Worked
- Feel much better but still neeed to closely monitor thyroid functions
