Join Now
abocage 
11:12am, September 24, 2009
Okay, I am about ready to lose my mind! I have been having this stupid joint pain for almost four weeks and it's driving my insane! I can't find a comfortable position when it is intense, which is more frequent than not. Plus climbing these stairs to get home are a ROYAL pain in my knees! I am feeling exhausted emotionally, physically, and mentally. I kinda feel like a cry baby about all this. I am trying to count my blessings, staying focused on what it's not, but it's hard. I called into the Oncology Pharmacy and talked to one of the nurses there and she hasn't heard about joint pain this bad with Gleevec users. Leave it up to me to be the first... She suggested maybe taking Celebrex or taking scheduled breaks from the Gleevec since I noticed a difference when I wasn't taking it. I am waiting for the doc to call me back and we'll see what he says. Hopefully we can find a solution to it all before I get checked in somewhere wearing a white jacket.
And I can't get my feeling to change for this entry... so no I am not a happy person right now. Bad would be the feeling for this entry.
Comments
I feel your pain. I also have "more" joint AND muscle pain since taking the Gleevec. I have had a bad chronic neck problem for years before this CML took my body over and I also had tendonitis in my elbow before all this, but since taking the Gleevec, I have worse pain and every new muscle pain,
joint pain, swelling, etc I get now is driving me out of my mind because I worry it's the CML. I am also exhausted emotionally...I cry alot too and physically I'm still very tired because of my low hemoglobin, but I too try to stay focused and optomistic in all this. My white counts are dropping, but so far my red cells are still low. I started taking my anti-inflamatory meds again (I take Day-Pro), and it does seem to help with the joint pain, so maybe the Celebrex will help you since that is also an anti-inflamatory drug. I hope you get relief soon.
specialk1957
Thank you so much! I feel like I'm not alone in this. It's hard to have someone understand truely what it feels like when they have no earthly idea. I have cried for the past two days because I just want the pain to go away. I have to call my doc back tomorrow and see what the game plan is. No Gleevec until then.
abocage
I know this entry was not supposed to be comical but I died laughing when you said bad would be the feeling for this entry. ooooohhh the frustrations of CML. What a joyous disease.
CorinaH
Looking back, it is kinda comical!! Glad it brought some laughter to you!
abocage