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  • About Me

    Image of LauraLu

    LauraLu

    Female, 45
    Minneapolis, MN, USA
    Member since October 3, 2008

  • Recent Activity

    Recently:

    • 1 hug received, 1 journal comment

    Monday

    • LauraLu commented on petvs’s journal entry September came... 9:28am

      I wish him well. My moms S.O. just went thru the same thing - symptomatic for quite some time, but had…  

    Sunday

    Thursday

    • LauraLu joined the Goiter support group 12:47pm

      DX'd with Multi-nodular goiter in August of 08.…  

    November 18

    November 13

  • Journal

    • This entry is private

    • Change of outlook

      Mood October 16, 2008 5:43pm

      I wonder if it's a common experience, for those who go thru some turmoil, to come out of it with an almost care-free attitude. I don't …

    • Hot to Clot - Thrombophilia & other big words

      Mood October 3, 2008 1:43pm

      Well it's been one crazy summer for sure. In fact, 2008 can go away any time now. From my workplace suddenly closing in February, my …

    Read Journal

  • Hugbook

    Give LauraLu a hug



    • Hug

      From richardkem Friday

      Thanks LauraLu. You nailed it in far less words than me. :)

    • Hug

      From JEB2007 November 8

      hey, how've you been? I've been gone for a while on here, need to catch back up!

    • High Five

      From rmb October 7

      What a game last night! It was almost world series like. I bet you are thrilled. Cool!

    • Hug

      From rmb September 14

      Do you remember that episode of Seinfeld about the lady with the goiter. My husband just thinks that's the funniest thing and I always have to tell him, dude, give it time and that'll be me.

      I don't know for sure if they're growing. I haven't had an ultrasound since diagnosis. But what's interesting is that the way I found out that I might even have a problem was when I had one of my many CTs of my lungs. The doctor said, nope, no clots, but just so you know, your thyroid is enlarged and it looks like it's larger than it was on the last scan, and it was large then. Ok, no one even told me it was large on the last scan. Then I had another CT scan at someone point, and it was the same thing- your thyroid is larger than the last time. I think I should have it re-checked. No one has given me direction on whether it I need to have it scanned periodically, or what. God, I hate doctors.

      I agree, the Endos seem generally focused on diabetes. I always feel like I'm just one of many whiney women with the same set of symptoms that these docs see every day.

      The fact that I constantly have my period is starting to weird me out. It mostly started in May/June of this year. This last one has been the worst. I got it when I was supposed to and it lasted 7 days, which is typical, but then on 9/2, I started what I thought was spotting and now it's turned into a lighter version of my period except IT'S STILL GOING. So, that has me all wound up. I don't know if that's thyroid related, hormone related or if something more sinister is going on. I have my annual with my OBGYN in few weeks so if something isn't resolved with my internist today, I'm going to rely on my OBGYN to sort it out.

      I read about something called thyroiditis, and I wonder if that's not what I have. I don't know. Lately, I also think I have ovarian cancer, a brain tumor, MS... you name it. Ugh....

    • Hug

      From rmb September 12

      Seriously, your situation sounds so similar to mine. I’ve seen two Endos. The first, who did the biopsies and all my thyroid testing, was very nice, but all he kept telling was that I had a “lumpy, bumpy thyroid.” Yeah, I get that but I feel NUTS and like I'm a 150 years old. He even did these tests to check reflexes which can be a sign of hypo and he thought for sure my blood work would come back showing hypo. Well, everything was normal. I want to another Endo a few months later complaining of fatigue, muscle /joint pain, neck pain, feeling like my neck and mouth were always “full.” And he just looked at the blood work from the last thyroid test as well as the biopsy results and said, you’ve got unremarkable cysts. I KNOW THAT. He did run some additional tests and found I was really vitamin D deficient and got me on some high vitamin D dosages to bounce my levels up. I’m now on maintenance dosage. It seems to help with the achy feeling. But I still feel like shit. What pisses me off is that you read all this information how the you can’t just go by the thyroid test and so you think, ok, if I see an Endo, they’ll adhere to that. Well, both these Endos totally are going by the thyroid tests. What are you supposed to do?

      The last two years have been so complicated. I had a my PE/DVT two years ago yesterday. The in April 2008 I got another DVT and shortly after, my Ulcerative Colitis went out of remission. So, I felt like shit for quite a while from that until I went on another drug which seems to have put me back in remission. Ulcerative Colitis can cause joint pain and other inflammation, so it’s hard to know what’s causing what. I can’t distinguish anything because so many things have gone on in my body in a short amount of time.

      So, my plan? Well, I found a new Internist in March and I’ve only seen him once to establish care. He’s been so good with my warfarin. I wanted to just get the INR under control and put the thyroid and the rest of it away for a while. I’m ready to address it again. I have an appointment with him on Monday. . I need help. I feel so emotionally fragile sometimes, so lazy and unmotivated about life. It scares me a bit. I’ve been in therapy the last couple of months thinking it’s all psychological, but I have to wonder if it’s physical and it’s making me feel nuts.

      Oh, hell. Sorry for going on. You’re a good shit for listening.

    Read Hugbook

  • Support Groups

    • Close Deep Vein Thrombosis (DVT)

      Diagnosed with a DVT in August, and discovered I'm F5 Leiden homozygous. I'm finding it difficult to get accurate, consistent information about anticoagulation therapy and F5 Leiden - I think the search for answers should start with people actually experiencing the same condition.

      Treatments

      Coumadin Too Soon to Tell
      I hate it, hate it, hate it. I can't get my INR under control, and between my primary doc and my hematologist, there is disagreement on how much I should be taking.
      Lovenox Working / Worked
      Took this after the initial diagnosis, and felt very comfortable with it because I knew it was therapeutic right away. The big bruises on my stomach were not very attractive though!
    • Close Pulmonary Embolism

      Currently recovering from DVT, diagnosed in August Factor 5 Leiden homozygous, have not looked into possible PE's prior to DVT diagnoses, but feel it's a strong possibility.

      Treatments

      Lovenox Working / Worked
      Gave myself twice daily shots until my INR got into therapeutic range, which took about 3 weeks!
    • Open Goiter

      DX'd with Multi-nodular goiter in August of 08.

  • Groups

  • Friends


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